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Development, execution, analysis and utilisation of a survey on long-term formal professional home care and institutional long term nursing care faculties in Europe.

Improving health services for European citizens with dementia: Best-practice strategies development for transition from professional home care to institutional nursing care facilities.

Status
Recruiting
Phases
Unknown
Study type
Observational
Source
NL-OMON
Registry ID
NL-OMON22946
Enrollment
2200
Registered
2011-12-23
Start date
2010-11-01
Completion date
Unknown
Last updated
2024-02-28

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Dementia

Interventions

Group 1: People with dementia who are recently admitted to an institutional nursing care facility (max. 3 months) and their informa caregivers. Group 2: People with dementia who live at home, receiv

Sponsors

Fundació Privada Clinic per la Recerca Biomedica, Hospital Clinic of Barcelona; Gerontopole, University of Toulouse; Lund University; Maastricht University; University of Manchester; University of Turku; University of Tartu; Witten/Herdecke University;
Lead Sponsor

Eligibility

Inclusion criteria

Inclusion criteria: 1. A formal diagnosis of dementia as diagnosed by an expert assessment (i.e. physician, psychiatrist, neurologist, geriatrician or general practitioner depending on countries’ specific diagnostic procedures) and recorded in the medical record; 2. An MMSE score of 24 or below; 3. The presence of an informal caregiver who visits at least twice a month.

Exclusion criteria

Exclusion criteria: 1. Patients < 65 years; 2. Patients wth a primary diagnosis of Korsakoff's disease or primary psychiatric diagnosis; 3. Patients whose informal caregiver cannot be identified.

Design outcomes

Primary

MeasureTime frame
1. People with dementia: Quality of life and quality of care; 2. Informal caregivers: Quality of life and caregiver burden.

Secondary

MeasureTime frame
1. People with dementia: Functional status, cognition, medication use, neuropsychiatric symptoms, comorbidity, use of services/resources; 2. Informal caregivers: Psychological wellbeing, positive and negative aspects of caregiving, experiences on quality of care.

Contacts

Public ContactHilde Verbeek

Department of Health Services Research CAPHRI School for Public Health and Primary Care Faculty of health Medicine and Life Sciences Maastricht University PO Box 616

h.verbeek@maastrichtuniversity.nl

Outcome results

None listed

Source: NL-OMON (via WHO ICTRP)