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Effects on quality of life and family caregiving experiences by the Namaste Care Family program for advanced dementia

Effects on quality of life and family caregiving experiences by the Namaste Care Family program for advanced dementia

Status
Active, not recruiting
Phases
Unknown
Study type
Interventional
Source
NL-OMON
Registry ID
NL-OMON22922
Enrollment
192
Registered
2016-03-23
Start date
2016-09-01
Completion date
Unknown
Last updated
2024-02-28

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Dementia-related impairments

Interventions

The Namaste Care Family program

Sponsors

VU University Medical Center, EMGO+ Institute for Health and Care Research, Department of Public and Occupational Health, Amsterdam, the Netherlands
Lead Sponsor

Eligibility

Inclusion criteria

Inclusion criteria: Nursing home residents with dementia who cannot initiative meaningful activities themselves. They cannot participate in the activities a nursing home usually offers. People will typically have advanced dementia. Others may have moderate dementia and challenging behaviour or they are particularly responsive to touch, and therefore they are expected to benefit from the program

Exclusion criteria

Exclusion criteria: Family does not give permission for the resident to participate in the program and the research

Design outcomes

Primary

MeasureTime frame
Patients’ quality of life and families’ positive caregiving experiences. These are measured with the Dutch translation of the Quality of Life in Late-Stage Dementia (QUALID) scale, the Dutch Positive Experiences Scale (PES) and the Dutch translation of the Gain in Alzheimer care Instrument (GAIN)

Secondary

MeasureTime frame
Secondary patient outcomes are (dis)comfort, behavior, health problems, and psychotropic medications. Secondary family outcomes are caregiver burden, (pre)grief, and perceptions of caregiving role. Finally, costs assessed from a societal perspective

Contacts

Public ContactJenny T. van der Steen
email: j.vandersteen@vumc.nl

Outcome results

None listed

Source: NL-OMON (via WHO ICTRP)