dementia caregivers, family meetings, psychosocial intervention mantelzorgers, dementie, familiegesprekken, psycho-sociale interventie
Conditions
Interventions
Sponsors
Eligibility
Inclusion criteria
Inclusion criteria: 1. Family caregiver who takes primary responsibility for the informal care of a community dwelling patient with a clinical diagnosis of dementia and who lives in the same region as the patient. We only include spouses, children (-in-law), brothers and sisters of the patient. 2. In each family, at least one other family member lives in the same region of the patient and caregiver. 3. Both caregiver and patient have sufficient language proficiency in Dutch for adequate participation in meetings, interviews and tests. 4. Written informed consent from both patient and caregiver is obtained. In case of mental incompetence of a patient the family caregiver will sign the consent for the patient.
Exclusion criteria
Exclusion criteria: 1. Severe somatic or psychiatric co-morbidity of either caregiver or patient, which will significantly impair cooperation to the program. 2. Either caregiver or patient participates in other intervention studies at inclusion or during the study. 3. Scheduled to move a patient to a nursing home.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| 1. Incidence of major depression and anxiety disorders (i.e. generalised anxiety and panic) as defined according to DSM-IV criteria. 2. Dimension/severity of anxiety and depression symptoms. | — |
Secondary
| Measure | Time frame |
|---|---|
| Caregiver 1. Caregiver Burden. 2. Quality of life Additional psychological questionnaires are used to explore profiles of caregivers who are best helped by the intervention Patients 1. Depressive symptoms in patients (NPI) 2. Quality of life Other: 1. (in)direct costs caregiver and patient 2. time until institutionalization | — |
Contacts
VU University medical center Amsterdam EMGO-Institute Dept. General Practice