aandoening: patients with cancer and pain (kanker en pijn) The incidence and prevalence of cancer is high, and many cancer patients have pain. The next decade, the prevalence of patients with cancer and oncological pain will still increase, so knowledge of barriers and misbeliefs of caregivers and patients about pain reporting, diagnosing and treating pain, together with improved communication is of upmost importance.
Conditions
Interventions
Sponsors
Eligibility
Inclusion criteria
Inclusion criteria: Participants: Via the hospital boards, professional caregivers, oncologists and nurses involved in cancer care of the six participating hospitals will be invited to take part. Patients who visit the oncology outpatient clinic will be screened for possible inclusion. Patients will be invited to take part by their medical oncologist or research nurse if they experience pain for the first time caused by cancer. Overall inclusion criteria for patients are: 1. Diagnosed with cancer; 2. Aged 18 years or older; 3. Pain intensity of 3 or more on an numeric rating scale (NRS) for the worst pain experienced in the last 24 hours; 4. Having and being familiar with the use of a mobile phone.
Exclusion criteria
Exclusion criteria: 1. Dementia and other severe cognitive disorders; 2. No informed consent; 3. Not Dutch speaking and writing.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| 1. Percentage of all patients that visit the medical oncology outpatient clinic with adequate pain therapy/medication with the Pain Management Index (PMI); 2. Mean pain intensity of those cancer patients with pain (NRS). | — |
Secondary
| Measure | Time frame |
|---|---|
| 1. Percentage of medical records of new patients in the outpatients oncology clinic, in which pain is registered with NRS; 2. Quality of life of patients with pain (EORTC QLQ-C30); 3. Knowledge of doctors of content of the guideline (questionnaire and Vignette); 4. Prospective descriptive study of pain intensity of the group of patients that will be monitored via sms-alerts and SMS pain reporting; 5. Process evaluation of the intervention study. | — |
Contacts
Huispost 630, route 598 postbus 9101