Neuropsychiatric symptoms in young-onset dementia
Conditions
Interventions
In this intervention study, the adapted Grip on challenging behavior care program will be implemented at ten YOD SCU's. A stepped wedge design will be used in which eventually all special care units w
Sponsors
Radboud University Medical Center (RadboudUMC), Nijmegen
Eligibility
Inclusion criteria
Inclusion criteria: Residents of young-onset dementia special care units (YOD SCU’s) of the Dutch young-onset dementia Knowledge Centre (DKC) with an established dementia diagnosis according to regular criteria will be included in the study. Residents with a symptom onset before the age of 65 are included in the study, thus residents can be over the age of 65. Prerequisite for inclusion will be informed consent of the resident and/or his legal representative. Deceased and discharged residents are replaced by newly admitted residents.
Exclusion criteria
Exclusion criteria: Residents with symptom onset after the age of 65 or residents with a history of other neurological disorders (i.e. head injury, stroke, Korsakoff’s syndrome, multiple sclerosis) will be excluded.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Agitation and Aggression as measured with the Dutch version of the Cohen-Mansfield Agitation Inventory (CMAI-D) Neuropsychiatric Symptoms measured with the Dutch version of the Neuropsychiatric Inventory-NH version (NPI-NH) | — |
Secondary
| Measure | Time frame |
|---|---|
| Resident related outcomes: Quality of life of the resident measured with the Quality of Life in Dementia (Qualidem) Psychotropic drug use (PDU) will be derived from medical files and classified using the Anatomical Therapeutical Chemical Classification. Nursing staff related outcomes: Workload measured with the Utrecht Burnout Scale-C (UBOS-C) Job satisfaction and work/time pressure is assessed with two subscales of the Leiden Quality of Work Questionnaire Absence rate will be retrieved from periodical registrations done by the personnel departments of participating nursing homes. Other outcomes: Sociodemographic variables Length of stay in the nursing home Dementia Type will be classified with the DSM-IV-TR Dementia severity with the Global Detoriation Scale (GDS) Environmental factors of the dementia care unit will be assessed with the Therapeutic Environment Screening Survey for nursing homes (TESS-NH) Nursing staff attitude will be measured with the Approaches to Dementia Questionnaire (ADQ) | — |
Contacts
Public ContactChristian Bakker
Outcome results
None listed