Severe Intellectual Disabiliy (SID) Ernstig Meervoudige Beperking (EMB) Difficulties in attunement with other people Stressregulation (Stressregulatie) Emotionregulation (Emotieregulatie) Behavioural Problems (Gedragsproblemen)
Conditions
Interventions
The ‘Attune & Stimulate’ checklist (Doodeman, Blom & Sterkenburg, 2018)
developed for parents and professional caregivers of persons with SID, to support them in noticing signs of psychosocial stress and responding adequately.
The checklist consists of two parts. The fi
Doodeman, Schuengel, & Sterkenburg, 2020
Sterkenburg, Janssen, & Schuengel, 2008). In a digital learning environment related to the A&S-checklist, parents and caregivers are trained to observe with the A&S-checklist and can get familiar with
Sponsors
This research is conducted within nine residential care organisations for people with an intellectual disabilities in the Netherlands. In this project we work together with care organisations Bartiméus, Ons Tweede Thuis, Cordaan en ASVZ, Accessibility, Prader-Willi Fonds, Stichting Down Syndroom and educational institutions VU, HvA, ROC Amsterdam and TU/e.
Eligibility
Inclusion criteria
Inclusion criteria: Clients: - IQ lower than 35 - 18 years or older Caregivers: - In the function of coordinating caregiver, assistant caregiver, caregivers or trainees
Exclusion criteria
Exclusion criteria: Caregivers; Clients; none. Caregivers; 1) work-relationship with the client for less than 3 months 2) in a function primarily focused on nursing (in Dutch, this function is called ‘ADL’er’ ) 3) interns * * In the Netherlands, there is a difference between ‘leerlingen’ (referred to as ‘trainees’) and ‘stagiaires’ (referred to as ‘interns’). The main difference important for our study, is the difference in involvement with a group home or day activity group. The first mentioned are more closely and for a longer period of time involved, because they stay for a long period of time, several days a week. The second mentioned are less closely and for a shorter period of time involved, because they stay for a short period of time and mostly only one day a week. For this reason, the ‘interns’ will be excluded from the study and the ‘trainees’ will be included in the study.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| The primary objective of this study is to investigate whether the checklist ‘Attune & Stimulate’ (in Dutch: Aansluiten & Stimuleren) results in a better attunement when used by caregivers of persons with severe intellectual disabilities compared to the attunement of caregivers who provide care as usual in the control group, and whether this results in a more optimal level of arousal in the clients. Research question: Does the use of the checklist ‘Attune & Stimulate’ results in better attunement of the caregivers to persons with severe intellectual disabilities than the attunement of caregivers who provide care as usual? And results this in more optimal level of arousal in the clients? Primary study parameter(s): Observed arousal level with the A&S-checklist Observed applied recommendations of the A&S-checklist by the caregiver Observed ‘responsive/child oriented behaviour’ of the caregiver with the Maternal Behavior Rating Scale (MBRS; Mahoney, 2008) | — |
Secondary
| Measure | Time frame |
|---|---|
| The secondary objective of this study is to test the construct validity of the new checklist ‘Attune & Stimulate’. Research questions: What is the correlation between the arousal observed with the A&S-checklist and related constructs? Other study parameter(s): a) Emotional development - Scale of Emotional Development – short (SED-S; Morisse, Sappok, De Neve, & Došen, 2017) or Scale of Emotional Development – revised (SED-R; Claes & Verduyn, 2012; Morisse & Došen, 2016). b) Adaptive functioning - Vineland Screener 0-6 jaar (Vineland-S; Scholte, Van Duijn, Dijkxhoorn, Noens, & Berckelaer-Onnes, 2008) or Sociale redzaamheidsschaal (SRZ; Kraijer, Kema, & De Bildt, 2004). c) Communication and influence - Subscale of the Quality Of Life of persons with Profound Multiple Disabilities (QOL-PMD; Petry, Maes, & Vlaskamp, 2008). d) Subjective well-being - The Mood, Interest, and Pleasure Questionnaire (MIPQ; Ross & Oliver, 2003), Dutch translation (Maes, Penne, Petry, & Vos, 2015). e) Physiological measurement of arousal - Skin conductance sensor sock (Frederiks, Croes, Chen, Bambang Oetomo, & Sterkenburg, 2015; Sterkenburg et al., 2017). | — |
Contacts
Public ContactTanja Doodeman
Vrije Universiteit Amsterdam
Outcome results
None listed