Congenital Heart Disease Aangeboren Hartafwijkingen
Conditions
Interventions
CHIP-Family (Congenital Heart Disease Intervention Program - Family)
The CHIP-Family intervention consists of:
1) A one-day group workshop for mothers and fathers (6 hours
problem prevention, psycho-education, parenting skills), given by two clinical psychologists and a pediatric cardiologist. Approximately 4 weeks later there will be an “individual” follow-up session f
Sponsors
Erasmus Medical Center, Sophia Children's Hospital
Eligibility
Inclusion criteria
Inclusion criteria: Eligible are all children who a) underwent an invasive cardiac procedure (catheter intervention, surgery) for congenital heart disease in the Erasmus Medical Center and b) are approximately 4 or approximately 6 years old and are, respectively, starting kindergarten (in Dutch: groep 1) or attending primary school (in Dutch: groep 3).
Exclusion criteria
Exclusion criteria: a) Child’s mental retardation due to a specified syndrome and b) parental inability to read and/or write Dutch.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Child behavioral/emotional problems (CBCL) Parental mental health (SCL-90-R) | — |
Secondary
| Measure | Time frame |
|---|---|
| School days sick/absent (Rotterdam Quality of Life interview) School functioning (TRF) Executive functioning (BRIEF or BRIEF-P) Enjoyment in leisure-time physical activity (Adjusted GEQ) Quality of life of children and siblings (CHQ-PF50) Parental Worry (PSWQ) Parenting Stress (NOSIK and DT-P) Quality of life of parents (SF-36) Family functioning (FAD) CHD-related variables: disease-specific knowledge and illness perception (Rotterdam Quality of Life interview), medical consumption Social validity (satisfaction and completion of CHIP-Family) | — |
Contacts
Public ContactMalindi van der Mheen
Erasmus MC, Sophia Kinderziekenhuis
Outcome results
None listed