Coaching, Motivational Interviewing, Aerobic exercise, Exercise therapy, Quality of life, Polio, Postpoliomyelitis syndrome, Charcot-Marie-Tooth, Neuromuscular diseases
Conditions
Interventions
- The intervention consists of a 6-month personalized physical activity program according to the I’M FINE strategy. This consists of a gradually increasing polarized home-based aerobic exercise progra
Sponsors
Amsterdam UMC, University of Amsterdam, Department of Rehabilitation, Amsterdam Movement Sciences, the Netherlands.
Eligibility
Inclusion criteria
Inclusion criteria: - Prior paralytic poliomyelitis (confirmed by signs of residual weakness and atrophy of muscles on neuromuscular examination, and with EMG) or diagnosis PPS (according to the March of Dimes criteria), Charcot-Marie-Tooth (confirmed by DNA testing or polyneuropathy compatible with CMT and positive family history), or other slowly progressive NMD (with no effective drug therapy). - Presence of a question for help indicative of impaired physical fitness or physical inactivity. - Minimum age of 18 years.
Exclusion criteria
Exclusion criteria: - Contraindication for being physically active. - Unable to follow verbal or written instructions. - Insufficient mastery of the Dutch language. - Engaged in an exercise program for a period longer than 4 weeks during the last 6 months.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Physical fitness (peak oxygen uptake) | — |
Secondary
| Measure | Time frame |
|---|---|
| - Daily activity - Health-related quality of life - Perceived physical functioning - Muscle function - Markers of metabolic syndrome - Self-efficacy - Physical capacity | — |
Outcome results
None listed