chronic obstructive pulmonary disease (COPD)
Conditions
Interventions
Observational study
Sponsors
Proteion Thuis
Eligibility
Inclusion criteria
Inclusion criteria: Patients with severe COPD (Global initiative for chronic Obstructive Lung Disease (GOLD classification III); patients with end-stage COPD (GOLD classification IV) without long-term oxygen therapy (LTOT); patients with end-stage COPD (GOLD classification IV) with LTOT; patients with end-stage CHF (New York Heart Association (NYHA) classification III and IV) and patients with end-stage CRF (requiring dialysis).
Exclusion criteria
Exclusion criteria: 1. The patient is not clinically stable for at least 4 weeks preceding enrolment (no hospital admission or major change in medication, according to the treating physician specialist); pharmacological therapy is not optimal (according to the current available guidelines) and stable for at least 2 months preceding enrolment and patients in a nursing home.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| - self-perceived symptoms; - care needs; - daily physical functioning; - general health status; - relatives’ perception of the patient’s symptoms and needs; - care-giver burden; - end-of-life care treatment preferences; - quality of end-of-life care communication; | — |
Secondary
| Measure | Time frame |
|---|---|
| - disease-specific health status; - current disease management; - barriers and facilitators in end-of-life care communication with the patient. | — |
Contacts
Public ContactDaisy J.A. Janssen
Central Department of Treatment and Care Proteion Thuis
Outcome results
None listed