Cerebral Palsy
Conditions
Interventions
COPCA (Coping with and caring for infants with neurologic dysfunction
Dirks & Hadders-Algra) is a new treatment programme for children with cerebral palsy.
Sponsors
Prof. dr. M. Hadders-Algra
University Medical Centre Groningen
Developmental Neurology (Postbox CA85)
PO Box 30.001
9700 RB Groningen
The Netherlands.
Tel: +31 50 3614252
Email: M.Hadders-Algra@med.umcg.nl
Eligibility
Inclusion criteria
Inclusion criteria: 1. Infants (3-9 months corrected age) at very high risk for CP or with CP and their families. 2. Participating caregivers must have sufficient comprehension of the Dutch language.
Exclusion criteria
Exclusion criteria: 1. Children with additional severe congenital disorders, such as serious congenital heart disorder
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Motor performance as measured by the Infant Motor Profile (IMP). | — |
Secondary
| Measure | Time frame |
|---|---|
| - Neurological condition according to Touwen Infant motor skills as measured with AIMS, GMFM, and Bayley Scales, Psychomotor Development Index. - Cognitive development as measured with Bayley Scales, Mental Development Index. - Daily life functioning as measured with the VABS and PEDI. - Quality of life as measured with the ITQOL. - Family related outcomes: video-analysis of caregiver's behaviour, UCL, NOSI-K, MPOC, FES. - Working mechanisms: postural control by means of multiple surface EMG recordings and Kinematics. Assesment of actual contents of COPCA and TPP sessions by means of video recordings. Weekly diaries and DAIS. | — |
Contacts
Public ContactM. Hadders-Algra
University Medical Center Groningen (UMCG) Beatrix Children's Hospital Developmental Neurology P.O. Box 30.001
Outcome results
None listed