Duchenne Muscular Dystrophy (DMD), Lower Urinary Tract Symptoms (LUTS)
Conditions
Keywords
Duchenne muscular dystrophy, lower urinary tract symptoms, urotherapy, education
Brief summary
This study aims to investigate the effects of urotherapy education provided to families of children with Duchenne muscular dystrophy on parents' knowledge, lifestyle changes, and satisfaction with the education. Families will receive an online urotherapy education session covering lower urinary tract function, bladder and bowel habits, appropriate toileting behaviors, lifestyle recommendations, and related management strategies. Parents' knowledge and awareness will be assessed before the education, immediately after the education, and two weeks later. Satisfaction with the education will also be evaluated after the session.
Detailed description
Duchenne muscular dystrophy (DMD) is a progressive neuromuscular disorder that may also be accompanied by lower urinary tract symptoms. Urotherapy is a conservative, non-pharmacological approach that includes education on bladder and bowel function, appropriate voiding and defecation habits, lifestyle modifications, and strategies for managing lower urinary tract symptoms. This prospective interventional study will evaluate the effects of an online urotherapy education program provided to families of children with DMD. The education will be delivered remotely in a single session of approximately three hours. Participants will be assessed before the education, immediately after the education, and two weeks later and 2 months after. The study will examine changes in parents' knowledge and awareness of urotherapy-related behaviors and lifestyle practices, as well as their satisfaction with the education provided.
Interventions
BEHAVIORALUrotherapy Education
Participants will receive a single online urotherapy education session lasting approximately three hours. The education will include information about lower urinary tract anatomy and function, lower urinary tract symptoms, bladder and bowel habits, appropriate voiding and defecation postures, scheduled voiding and defecation, fluid intake, lifestyle modifications, pelvic floor muscle awareness, and general strategies for managing lower urinary tract symptoms. Educational materials may include visual materials, videos, and other supporting resources.
Sponsors
Lokman Hekim University
Study design
Allocation
NA
Intervention model
SINGLE_GROUP
Primary purpose
OTHER
Masking
NONE
Intervention model description
A single-group pretest-posttest design will be used. All participants will receive the same online urotherapy education, with assessments conducted before the education, immediately after the education, and two weeks after the education and 8 weeks after.
Eligibility
Sex/Gender
ALL
Healthy volunteers
Yes
Inclusion criteria
* Being a parent or caregiver of a child diagnosed with Duchenne muscular dystrophy. * Volunteering to participate in the study. * Providing informed consent. * Being able to participate in the online urotherapy education and complete the study assessments.
Exclusion criteria
* Not completing the urotherapy education session. * Not completing the required study assessments.
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Change in Urotherapy Knowledge Level | Baseline, two weeks after, 8 weeks after | Parents' knowledge of urotherapy will be assessed using a 10-item knowledge test developed by the researchers based on the educational content. The test consists of five true/false and five multiple-choice questions. Each correct answer is worth 10 points, resulting in a total score ranging from 0 to 100. Higher scores indicate a higher level of knowledge about urotherapy. |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Change in Urotherapy-Related Lifestyle Behaviors | After 2 weeks and 8 weeks | Urotherapy-related lifestyle behaviors will be assessed using awareness questions developed by the researchers. The questions evaluate voiding frequency, defecation frequency, daily water intake, consumption of tea, coffee, and carbonated beverages, appropriate toileting posture, and implementation of lifestyle recommendations introduced during the urotherapy education. Changes in these behaviors after the education will be evaluated. |
| Satisfaction With Urotherapy Education | Baseline | Satisfaction with the urotherapy education will be assessed using an 8-item satisfaction questionnaire developed by the researchers. Each item is rated on a 5-point Likert scale ranging from 1 (strongly disagree) to 5 (strongly agree). The total score ranges from 8 to 40, with higher scores indicating greater satisfaction with the education. |
Countries
Turkey (Türkiye)
Contacts
CONTACTDemet Öztürk, Phd
Outcome results
None listed