Sickle Cell Anemia in Children
Conditions
Keywords
sickle cell disease, sickle cell anemia, innovative educational, self efficacy, self care agency
Brief summary
Sickle-cell disease (SCD) is a genetic disorder that affects hemoglobin, the molecule in red blood cells responsible for carrying oxygen. The disease causes red blood cells to become rigid and sickle-shaped, leading to blockages in blood flow and subsequent pain and organ damage (World Health Organization (WHO),2025). Patients with sickle cell disease suffer from various complications of the disease during their lifetime, including anemia, sickle cell crises, acute chest syndrome, stroke, renal failure, retinal detachment and priapism. However, unforeseen and chronic pain crisis are the most common symptoms reported by the patients which are considered as the most common causes of referral to the emergency department and hospital to receive medical care in sickle cell patients (Poku, Atkin,& Kirk,.2023). Objective(s) of the study: 1. To evaluate the effectiveness of Innovative Educational Methods on self-efficacy in children with sickle cell anemia. 2. To evaluate the effectiveness of Innovative Educational Methods on self-care capacity in children with sickle cell anemia. 3. To find out the relationship between the effectiveness of Innovative Educational Methods on self-efficacy, self-care capacity and demographic characteristics of children with sickle cell anemia.
Interventions
OTHERvideo intervention
Participants in this group will watch an educational video lasting under 5 minutes. The video covers key information about anemia, including its definition, pathophysiology, symptoms, underlying causes, potential complications, and preventive pain crisis in simple way by use AI programs to generation it ."
OTHERgame intervention
Participants in this group will play an educational game . The game covers key information about anemia, including its definition, pathophysiology, symptoms, underlying causes, potential complications, and preventive pain crisis in simple way by use AI programs to generation it .
Sponsors
Aula Ibrahim abd alrazak
Study design
Allocation
RANDOMIZED
Intervention model
PARALLEL
Primary purpose
SUPPORTIVE_CARE
Masking
SINGLE (Outcomes Assessor)
Eligibility
Sex/Gender
ALL
Age
11 Years to 18 Years
Healthy volunteers
No
Inclusion criteria
1. children with sickle cell anemia and visited Ibn Al-Baladi ,Al-Karamah center for hereditary blood diseases 2. age 12-18 years 3. being able to read and write 4. agrees and willing to participate in the study
Exclusion criteria
1. children who have a history of mental illness 2. children with advanced complications of SCD, such as multi-system organ damage
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| self-care capacity level | pre and immediately post intervention and post 2 after 1 month | The Appraisal of Self-Care Agency Scale-Revised (ASA-R) According to Orem's self-care theory, Kearney and Fleischer originally developed this scale to assess the health-related self-care capacity level The scale consists of 15 items, |
| self efficacy | pre and immediately post intervention and post 2 after 1 month | Sickle Cell Self-Efficacy Scale (SCSES): The Sickle Cell Self-Efficacy Scale, adapted from Edwards et al. (2001), was used to assess patients' abilities to manage their SCD and carry out daily activities effectively. |
Countries
Iraq
Contacts
CONTACTaula I Al Ali, Phd student
Outcome results
None listed