Caregiver Burden, Pain, Quality of Life
Conditions
Keywords
caregivers, disabled children, pain measurement, quality of lifeife
Brief summary
This study aims to investigate the relationships between pain intensity, caregiver burden, and quality of life in mothers of children with disabilities. Pain intensity, caregiver burden, and physical and mental quality of life will be evaluated using validated outcome measures. The study also aims to determine independent factors associated with quality of life in caregivers.
Detailed description
Mothers of children with disabilities are exposed to substantial physical and psychological demands due to long-term caregiving responsibilities. These challenges may negatively affect pain levels, caregiver burden, and quality of life. However, the relationships between these factors have not been sufficiently investigated. This cross-sectional observational study aims to examine the associations between pain intensity, caregiver burden, and quality of life in mothers of children with disabilities. Pain intensity will be assessed using the Numeric Pain Scale (NPS), caregiver burden using the Zarit Caregiver Burden Scale, and quality of life using the Short Form-12 (SF-12), including physical and mental component scores. Pearson correlation and multiple linear regression analyses will be performed to determine the relationships between variables and identify independent determinants of quality of life.
Interventions
OTHERNot Applicable (N/A)
Not Applicable (N/A)
Sponsors
Uskudar University
Study design
Observational model
COHORT
Time perspective
CROSS_SECTIONAL
Eligibility
Sex/Gender
FEMALE
Age
18 Years to 65 Years
Inclusion criteria
* Mothers aged 18 years and older who were the primary caregiver of a child with disabilities and who agreed to participate in the study were included.
Exclusion criteria
* Mothers with diagnosed neurological, rheumatological, or severe musculoskeletal disorders that could independently affect pain, physical activity, or quality of life were excluded. * Mothers with cognitive impairment preventing questionnaire completion were also excluded
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Zarit Caregiver Burden Scale | baseline | The Zarit Caregiver Burden Scale is a self-reported questionnaire used to evaluate the level of burden experienced by caregivers. Higher scores indicate greater caregiver burden. |
| Numeric Pain Scale (NPS) | baseline | The Numeric Pain Scale is an 11-point scale ranging from 0 (no pain) to 10 (worst imaginable pain) used to assess pain intensity. |
| Short Form-12 (SF-12) | baseline | The SF-12 is a validated health-related quality of life questionnaire consisting of physical and mental component scores. Higher scores indicate better quality of life. |
Countries
Turkey (Türkiye)
Outcome results
None listed