Psychosocial Problem
Conditions
Brief summary
Assess caregiver psychosocial burden, including Quality of Life, health, interpersonal relationship, access to support, and explore associated sociodemographic and contextual factors.
Detailed description
While literature suggests significant psychosocial burden among hepatobiliary cancer caregivers, quantitative data specific to this population remain sparse, particularly regarding their Quality of Life, health, interpersonal relationship, and access to support. This investigation will fill a critical research gap by candidly assessing these dimensions and laying groundwork for future interventions tailored to improve caregiver well-being.
Interventions
None listed
Sponsors
Methodist Health System
Study design
Observational model
OTHER
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
18 Years to No maximum
Healthy volunteers
Yes
Inclusion criteria
Caretakers must be aged 18 years or older at the time of the survey Participants must be a family member or caretaker of an individual who is diagnosed with hepatobiliary cancer and is receiving care at the Methodist Cancer Center in Richardson, Texas. Diagnosis should be made within 2 years and is non-recurrent in nature. Participants must be an English speaker.
Exclusion criteria
This study is intended to assess the burden and well-being of unpaid caretakers of hepatobiliary cancer patients. Thus, paid caretakers, such as home health aides, will be excluded from the survey.
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Quality of Life score | 1 year | Quality of Life score from the World Health Organization Quality of Life Survey |
Countries
United States
Contacts
CONTACTCrystee Cooper, DHEd
CONTACTKavya Mankulangara
Outcome results
None listed