Cancer, Cancer (Active Cancer, Meaning Not Being Cancer Free), of Any Stage and Involving Any Treatment/Care Regimen; i.e. Curative, Life-extending, or Palliative, Cancer (Advanced Stage), Cancer (Solid Tumors), Cancer (With or Without Metastasis)
Conditions
Brief summary
The 1939 Cancer Act in the UK (England & Wales) prohibits advertising of cancer treatments to the public, by anyone but the NHS. The rise of the internet and social media presents new challenges to its enforcement and raises questions about unintended consequences for patients being treated for cancer. Through anonymous surveys, this study aims to understand how patients, healthcare professionals and industry professionals perceive technological changes and their implications for online and social media cancer care information, as well as highlight opportunities for safe and ethical modernisation.
Detailed description
This study will be inviting patients who have recently received treatment for cancer to participate in a single survey, about their experiences of online and social media information during their cancer journey and their views on the current law. Healthcare professionals who work with cancer patients will also be invited to participate in their own variation of this survey.
Interventions
None listed
Sponsors
Royal Cornwall Hospitals Trust
University of Warwick
Study design
Observational model
OTHER
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
18 Years to No maximum
Healthy volunteers
Yes
Inclusion criteria
Patients/Relatives: * UK residents (England and Wales ONLY). * Have been treated for a cancer within the last three years. * Aged 18 or over. * Can complete the survey themselves or have it completed on their behalf by a friend or family member (with the patient's permission). Healthcare Professionals: * UK-based professionals in the healthcare industry. * Working with patients diagnosed with cancer. * Consulting with patients at least once a month or more frequently. * Aged 18 or over.
Exclusion criteria
No explicit
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Is the 1939 Cancer Act fit for purpose in the current digital era? | The study will be open for 6 months | The survey uses factual single-choice items, multiple-response items and mainly Likert-scale attitude questions. Themes of questions and reported outcomes are: * Current use of online information for cancer: report descriptively. * Reasons for not using online/social media information. Report proportions and themes of free-text question. * Private healthcare information access. Report descriptively. Following outcomes will have numerically-codes Likert scales with report of mean and standard deviation: * Perceived adequacy of cancer information * Confidence in evaluating online cancer information * Attitudes toward the Cancer Act 1939. Support for modernising the Cancer Act, Attitudes toward direct-to-patient advertising and advertising of alternative treatments * Views on digital misinformation issues Overall view on reform. Assesses whether the Cancer Act needs reform; treat as an ordinal outcome with statistical testing (Kruskall Wallis test, P value, SD). |
Countries
United Kingdom
Outcome results
None listed