Caregiver Burden
Conditions
Brief summary
The purpose of this study is to test WECARE, a seven-week multimedia intervention designed to reduce psychosocial distress and provide education and support for caregivers. This study will include Chinese American family caregivers of persons living with Alzheimer's disease and related dementias. Participants will engage with digital learning materials and supportive resources over the course of the program. The goal is to determine whether this approach improves caregiver well-being and reduces stress related to caregiving.
Interventions
BEHAVIORALWECARE
The 7-week WECARE intervention was designed to improve caregiving skills, alleviate caregiver distress, and enhance the psychosocial well-being of dementia caregivers.
Sponsors
George Mason University
Study design
Allocation
RANDOMIZED
Intervention model
PARALLEL
Primary purpose
SUPPORTIVE_CARE
Masking
SINGLE (Subject)
Eligibility
Sex/Gender
ALL
Age
21 Years to 100 Years
Healthy volunteers
No
Inclusion criteria
1. currently residing in the United States, 2. self-identify as Chinese or Chinese American and are able to read in Chinese, 3. are 21 years of age or older, 4. own a cellphone and use WeChat, and 5. provide at least 8 hours of care per week to a family member or loved one with ADRD.
Exclusion criteria
(1) evidence of severe cognitive impairment or mental disorders, or (2) the care recipient was receiving hospice care or had a life expectancy of fewer than six months.
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Efficacy of Behavioral Intervention in Change From Baseline in Depressive Symptoms | Baseline, and Follow-Up at Weeks 11-12 (4 to 5 weeks after completion of the intervention) | The baseline and follow-up differences in depressive symptoms will be assessed using the Center for Epidemiologic Studies Depression Scale (CES-D). The CES-D is a 20-item survey instrument designed to measure the frequency and severity of depressive symptoms. The total score is calculated by summing the responses to all 20 items. The total scale ranges from 0 to 60, with higher scores indicating more severe depressive symptoms (a worse outcome). The primary analysis will calculate the difference in this total score between baseline and follow-up. adults and dementia caregivers. |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Efficacy of Behavioral Intervention in Change From Baseline in Caregiving Burden | Baseline, and Follow-Up at Weeks 11-12 (4 to 5 weeks after completion of the intervention) | The baseline and follow-up differences in caregiving burden will be assessed using the 12-item Zarit Burden Interview (ZBI-12). The ZBI-12 is designed to measure the subjective physical, psychological, and social burden experienced by caregivers. Each item is rated on a 5-point scale from "never" (0) to "nearly always" (4), The total score is calculated by summing the responses to all 12 items. The total scale ranges from 0 to 48, with higher scores indicating greater caregiving burden (a worse outcome). The primary analysis will calculate the difference in this total score between baseline and follow-up. |
Outcome results
None listed