Neuroendocrine Cervical Cancer, Patient Support
Conditions
Brief summary
To learn about the effects of a participant support community on illness perception, emotional well-being, and feelings of isolation among participants with NECC.
Detailed description
Primary Objective 1\. To assess the impact of a participant support community on illness perception, emotional wellbeing and feelings of isolation among participants diagnosed with NECC. Secondary Objectives 1. To understand how peer support affects communication with healthcare providers. 2. To explore how the support community affects coping strategies. 3. To evaluate the perceived value and acceptability of the support community structure and delivery. 4. To identify unmet needs and challenges experienced by participants with NECC.
Interventions
OTHERQuestionnaire
Demographic questionnaire
Sponsors
M.D. Anderson Cancer Center
Study design
Observational model
OTHER
Time perspective
CROSS_SECTIONAL
Eligibility
Sex/Gender
ALL
Age
18 Years to No maximum
Healthy volunteers
No
Inclusion criteria
Eligibility Criteria * Histologically confirmed NECC. * Aged 18 years or older. * English proficient. * Provision of signed and dated informed consent form. * Stated willingness to comply with all study procedures and availability for the duration of the study. * Access to necessary resources for participating in a technology-based intervention (i.e., computer, smartphone, internet access).
Exclusion criteria
None
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Demographic questionnaire | Through study completion; an average of 1 year | This questionnaire will collect basic information including age, marital status, number of children, disease stage at diagnosis, and current disease status and treatment. |
Countries
United States
Contacts
CONTACTLarissa Meyer, MD
PRINCIPAL_INVESTIGATORLarissa Meyer, MD
M.D. Anderson Cancer Center
Outcome results
None listed