Sarcoma
Conditions
Keywords
sarcoma, palliative care, aggressivness of care, cancer, end of life
Brief summary
The goal of this observational study is to describe palliative pathways in adult patients who died from their sarcoma. The main question it aims to answer is: How patients who died from sarcoma are followed by palliative team.
Interventions
None listed
Sponsors
Centre Leon Berard
Institut Curie
Gustave Roussy, Cancer Campus, Grand Paris
Study design
Observational model
COHORT
Time perspective
RETROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
18 Years to No maximum
Inclusion criteria
* Oncology follow up in Centre Léon Bérard, or Institut Gustave Roussy, or Institut Curie * sarcoma histology confirmed * \>18 years at diagnosis * death between 01/01/2024 ans 31/12/2024 * death related to sarcoma
Exclusion criteria
* \>1 year between last follow up in Centre Léon Bérard, or Institut Gustave Roussy, or Institut Curie and death * patient opposed to the collect of data
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Palliative pathways of patients who died from sarcoma | From date of inclusion until the date of death from any cause, assessed up to 42 months | Palliative pathways will be described using the proportion of patients with each of the following component : * hospitalisation in a palliative care unit, * consultation with palliative care doctor, * mobile palliative care team advice We collect data on the first and last time of each kind of palliative follow up, we collect the number of day between the meeting and death For exemple: palliative care unit: first meeting 200 days before death and last meeting 80 days before death |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Treatment with chemotherapy in the last 14 days of life | From date of inclusion until the date of death from any cause, assessed up to 42 months | Percentage and number of patients having a treatment with chemotherapy in the last 14 days of life |
| More than 1 visit in an emergency unit in the last 30 days of life | From date of inclusion until the date of death from any cause, assessed up to 42 months | Percentage and number of patients having more than 1 visit in an emergency unit in the last 30 days of life |
| Hospitalization in a resuscitation unit in the last 30 days of life | From date of inclusion until the date of death from any cause, assessed up to 42 months | Percentage and number of patients having a hospitalization in a resuscitation unit in the last 30 days of life |
| More than 1 hospitalization in the last 30 days of life | From date of inclusion until the date of death from any cause, assessed up to 42 months | Percentage and number of patients having more than 1 hospitalization in the last 30 days of life |
| Less than 3 days in palliative care unit | From date of inclusion until the date of death from any cause, assessed up to 42 months | Percentage and number of patients having a hospitalization in a palliative care unit less than three days before death |
| New chemotherapy regimen starting in the last 30 days of life | From date of inclusion until the date of death from any cause, assessed up to 42 months | Percentage and number of patients having a new chemotherapy regimen starting in the last 30 days of life |
| Place of death | At the date of death from any cause, assessed up to 42 months | Hospital and type of unit or home will be described |
Countries
France
Outcome results
None listed