Textual Analysis of Narratives Produced by Adolescent Oncology Patients: A Research Project

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

ClinicalTrials.gov

Registry ID

NCT07527416

Acronym

Testi AYA

Enrollment

500

Registered

2026-04-14

Start date

2021-09-01

Completion date

2027-12-01

Last updated

2026-04-14

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Cancer

Brief summary

This research project builds on a long-standing tradition within our Institute of documenting "free thoughts" and personal reflections shared by adolescent oncology patients and their families. These narratives, collected through "logbooks" in ward rooms and during dedicated events-including those focused on the COVID-19 pandemic-represent a profound tool for patients to reclaim their identity beyond their diagnosis. The aim is to stimulate and collect patient narratives to better understand their emotional and lived experiences. By analyzing these spontaneous writings, the study aims to improve clinical practice, enhance the patient-provider relationship, and optimize the overall healthcare organization.

Interventions

None listed

Study design

Observational model

COHORT

Time perspective

OTHER

Eligibility

Sex/Gender

ALL

Age

13 Years to 25 Years

Healthy volunteers

Inclusion criteria

* adolescents and young adults treated at the Area giovani CRO from 2021 * willing to participate at the study

Exclusion criteria

* absence of informed consent

Design outcomes

Primary

Measure	Time frame	Description
Thematic Analysis of Patient Narratives	10 years	Evaluation of narrative content to identify key themes, semantic fields (values, emotions, perceptions), and prevailing cultural orientations. The analysis aims to characterize the patient's experience and identify potential unresolved conflicts related to the oncological journey, as defined by Pinardi and De Angelis (2006) methodology.
Structural Analysis of the text	10 years	To identify and examine the core elements of the text, including the narrator, characters, spatial and temporal settings, and point of view.
Stylistic Analysis	10 years	Evaluation of the linguistic register and the identification of key rhetorical figures used to convey personal meaning
Processual Analysis	10 years	ased on the "Processual Analysis" framework (Turchi, 2007), this phase describes the architecture of the text starting from the discursive processes (repertoires) employed by the narrators. The goal is to identify how specific uses of language generate and define the participants' configurations of reality. All the analyses are qualitative

Countries

Italy

Outcome results