Experience of Young Adult Kidney Patients Requiring Haemodialysis

To Explore the Experience of Young Adults (16-30) Receiving In-centre Haemodialysis (HD) and Seek to Understand the Barriers to Opportunities for Social Interaction and How we Might Reduce Social Isolation in the Dialysis Setting.

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

ClinicalTrials.gov

Registry ID

NCT07494695

Acronym

YAoHD

Enrollment

Registered

2026-03-27

Start date

2025-08-01

Completion date

2027-03-31

Last updated

2026-03-27

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Chronic Kidney Disease on Hemodialysis

Keywords

Young adults, in-centre Haemodialysis, isolation, loneliness

Brief summary

This study has been designed with individuals with lived experience of kidney disease and is a mixed methods study. The aim is to explore experiences of young adults (16-30) receiving haemodialysis in a centre or in a hospital, to understand barriers to opportunities for social interaction and to develop co-produced resources to address social isolation in the dialysis setting. This aim of this study is to give a voice to young adults who are receiving haemodialysis in a centre or hospital setting. There will be 3 parts to this study: 1. What is the support for young adults on haemodialysis. A survey will be sent out to all of the haemodialysis units to find out about support for young adults. Young adults who have had haemodialysis in a unit will be asked about their experiences. We will ask if they feel lonely or social isolated. 2. To explore the experiences of young adults on haemodialysis. We will have focus groups and interviews with young adults and ask them about experiencing haemodialysis in a unit. Young adults from diverse backgrounds will be recruited. This is to make sure that the recommendations and resources are meeting the needs of all young adults. 3. Develop recommendation and resources for young adults on haemodialysis. A workshop with young adults and individuals with experience of haemodialysis. Will be held. Resources and recommendations, for improving the experience of young adults on haemodialysis will be developed. Interventions for implementing will be discussed as well. This will be a face-to-face workshop but with if useful people can attend virtually. This study is an opportunity to help change or improve young adults experience in the future. Having haemodialysis as a young adult shouldn't make a person feel lonely or isolated.

Interventions

None listed

Study design

Observational model

COHORT

Time perspective

PROSPECTIVE

Eligibility

Sex/Gender

ALL

Age

16 Years to 30 Years

Healthy volunteers

Inclusion criteria

* Young adults (16-30) with kidney failure requiring haemodialysis. * Had haemodialysis in a dialysis unit * Has capacity to participate.

Exclusion criteria

* Young adults \<16 or \>30 with kidney failure requiring haemodialysis. * No experience of in-centre haemodialysis. * No capacity to consent

Design outcomes

Primary

Measure	Time frame
To assess if young adults with kidney disease experience loneliness	through study completion, an average of 1 year

Secondary

Measure	Time frame
To identify if young adults with kidney disease requiring haemodialysis undertake self management of their kidney disease	through study completion, an average of 1 year
To explore feelings around being a young adult on haemodialysis	through study completion, an average of 1 year
To identify what support there is for young adults on haemodialysis	through study completion, an average of 1 year

Countries

United Kingdom

Contacts

PRINCIPAL_INVESTIGATORKaren Nagalingam

University of Hertfordshire

Outcome results