Alzheimer Dementia (AD)
Conditions
Keywords
Storytelling intervention, mHealth, Early detection, Rural health, Vietnam
Brief summary
This project aims to improve knowledge regarding Alzheimer's dementia and related dementias (ADRD) among older adults and their caregivers in Vietnam and promote the early diagnosis of ADRD using a digital storytelling intervention.
Detailed description
This study will develop and test a Digital Storytelling intervention to improve older adults' and caregivers' knowledge of ADRD and to facilitate early diagnosis in rural areas of Vietnam. The Digital Storytelling Intervention includes interactive multimedia modules for motivating behavior change and improving knowledge and attitudes toward ADRD among older adults and their caregivers through the power and voices of patients with mild to moderate ADRD, older persons with cognitive concerns, and their caregivers. Mobile Health technology (Computerized Intervention Authoring System - CIAS) will be used to deliver the intervention.
Interventions
BEHAVIORALStorytelling intervention
Participants will receive a digital storytelling intervention featuring narratives from older adults with mild to moderate Alzheimer's disease and related dementias (ADRD) and their caregivers who have successfully managed the condition. The stories highlight the benefits of early ADRD diagnosis and strategies for managing diagnostic and care-related challenges. The intervention will be delivered at baseline and biweekly thereafter for three months via CIAS, with didactic "Learn More" modules provided following the stories.
BEHAVIORALBasic information
Participants will receive basic information about Alzheimer's disease and related dementias (ADRD), issued by the Vietnam Ministry of Health (usual care), at baseline and at Month 3.
Sponsors
University of Massachusetts, Worcester
Alzheimer's Association
Study design
Allocation
RANDOMIZED
Intervention model
PARALLEL
Primary purpose
DIAGNOSTIC
Masking
SINGLE (Subject)
Intervention model description
Cluster randomized controlled trial
Eligibility
Sex/Gender
ALL
Age
60 Years to No maximum
Healthy volunteers
No
Inclusion criteria
* Older adults (age ≥ 60 years) residing in one of the four participating communities (communities in rural areas of Phu Tho province with minimum distance of 10 km between participating communities) * Concern about mild cognitive impairment expressed by the participant, caregiver, or healthcare provider, with no formal screening for ADRD * Ability and willingness to provide informed consent * Caregivers of eligible participants will be invited to participate after providing written consent.
Exclusion criteria
* Current participation in another ADRD study * Severe cognitive impairment as evaluated by study co-investigators * Enrollment in palliative care or diagnosis of a terminal illness * Previous exposure to digital storytelling modules * Prior participation in the digital storytelling development.
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Intervention Feasibility: Participant Recruitment and Retention | Baseline, Month 3, Month 6 | Feasibility will be assessed using recruitment and retention records, including the number of participants approached, reasons for ineligibility or refusal, and study completion rates. |
| Intervention Engagement: Interaction Records from CIAS | Month 3, Month 6 | Engagement will be assessed using the number of videos watched. |
| Intervention Engagement: Exit Interview | Month 6 | Information on participants' experiences with the intervention will be collected through exit interviews. |
| Intervention Acceptability: System Usability Scale (SUS) | Month 3, Month 6 | SUS is a 10-item, 5-point Likert scale for subjective assessment of usability. The SUS scores range from 0 to 100. A score of \> 50 indicates that the technology-based interventions are acceptable. |
| ADRD Knowledge: Dementia Knowledge Assessment Scale (DKAS) | Baseline, Month 3, Month 6 | DKAS is a 25-item scale that evaluates dementia knowledge. Total scores range from 0 to 50, with higher scores indicating greater knowledge. |
| Attitudes: Dementia Attitude Scale (DAS) | Baseline, Month 3, Month 6 | DAS is a 20-item, 7-point Likert scale assessing attitudes toward dementia and people living with dementia. Items are summed, with selected items reverse-coded as appropriate, to calculate a total score (range: 20-140). Higher scores indicate more positive attitudes. |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| ADRD Screening/Diagnosis | Month 3, Month 6 | Rates of ADRD screening and diagnosis will be obtained via interviews and through review of participants' medical records by trained study staff. The diagnosis will be reviewed and confirmed by the study co-investigators (physicians). |
| Quality of Life: SF-12 | Baseline, Month 3, Month 6 | The SF-12 is a 12-item scale that assesses health-related quality of life across physical and mental well-being domains. Scores can range from 0 to 100, with higher scores indicating better quality of life. |
| Self-Care: The Self-Care of Chronic Illness Inventory (SC-CII) | Baseline, Month 3, Month 6 | SC-CII is a 29-item scale assessing self-care behaviors across three domains: self-care maintenance, self-care monitoring, and self-care management. Scores range from 0 to 100, with higher scores indicating better self-care. |
Countries
Vietnam
Contacts
CONTACTHoa Nguyen, PhD
CONTACTDeogwoon Kim, PhD
PRINCIPAL_INVESTIGATORHoa Nguyen, PhD
University of Massachusetts, Worcester
Outcome results
None listed