Multiple Sclerosis Implementation Network (Registry)

Multiple Sclerosis Implementation Network

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

ClinicalTrials.gov

Registry ID

NCT07415824

Enrollment

2000

Registered

2026-02-17

Start date

2025-04-28

Completion date

2030-12-31

Last updated

2026-02-17

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Multiple Sclerosis

Brief summary

The Multiple Sclerosis Implementation Network (MSIN) is a collaboration between the Multiple Sclerosis Association of America (MSAA), The University of Texas Health Science Center at Houston (UTHealth Houston), Dell Medical School at The University of Texas at Austin, and Novartis Pharmaceuticals Corporation. The goal of MSIN is to improve Multiple Sclerosis (MS) care, patient health, and quality of life through the development and support of implementation research and clinical practice collaboration. MSIN brings together healthcare teams, people with MS, and research leaders in MS and implementation science (IS) to learn, share, test, implement, and disseminate innovations that improve MS care, patient health, and quality of life. This ClinicalTrials.gov record pertains to the MSIN Patient Registry, which is a comprehensive database that integrates participants' electronic health records from various providers.

Interventions

None listed

Study design

Observational model

CASE_ONLY

Time perspective

PROSPECTIVE

Eligibility

Sex/Gender

ALL

Age

18 Years to No maximum

Healthy volunteers

Inclusion criteria

* diagnosed with Multiple Sclerosis * can speak and understand English comfortably

Design outcomes

Primary

Measure	Time frame	Description
Multiple sclerosis disability as assessed by the Patient-Determined Disease Steps (PDDS) Scale	5 years	Total score on the PDDS ranges from 0 (normal) to 8 (Bedridden: Unable to sit in a wheelchair for more than one hour), with a higher score indicating a worse outcome.
Perception of cognitive impairment as assessed by the Multiple Sclerosis Neuropsychological Questionnaire (MSNQ) Scale	5 years	Total score on the MSNQ ranges from 0 to 60, with a higher score indicating greater perceived cognitive impairment.

Countries

United States

Contacts

CONTACTAmanda Montague, EdM

AMontague@MYMSAA.org800-532-7667

STUDY_DIRECTORAmanda Montague, EdM

Multiple Sclerosis Association of America

Outcome results