A Qualitative Study Investigating the Lived Experiences and Impact of Reproductive Issues in Adults With Primary Ciliary Dyskinesia

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

ClinicalTrials.gov

Registry ID

NCT07357558

Enrollment

Registered

2026-01-22

Start date

2025-09-02

Completion date

2026-07-31

Last updated

2026-01-22

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Primary Ciliary Dyskinesia (PCD)

Keywords

fertility, pregnancy, reproduction, parenthood, qualitative, interviews

Brief summary

Study involving undertaking research interviews with adults who have primary ciliary dyskinesia in the UK about their views and experiences of fertility, pregnancy and parenthood

Interventions

OTHERInterview only

No intervention

Study design

Observational model

OTHER

Time perspective

PROSPECTIVE

Eligibility

Sex/Gender

ALL

Age

18 Years to No maximum

Healthy volunteers

Inclusion criteria

* Lives in United Kingdom * 'likely' or 'confirmed' diagnosis of PCD * able and willing to sign the consent form

Exclusion criteria

* unwilling to participate in the study * not meeting inclusion criteria

Design outcomes

Primary

Measure	Time frame	Description
Qualitative description of views and experiences of participants	Explored during study interview (day 1)	Explored during study interview

Countries

United Kingdom

Contacts

CONTACTLydia Newman

Lydia.newman@soton.ac.uk02381206033

Outcome results

None listed

Source: ClinicalTrials.gov · Data processed: Feb 4, 2026