Multiple Sclerosis
Conditions
Brief summary
Multiple sclerosis (MS) is a chronic neurodegenerative disease and a leading cause of reduced workforce participation due to neurological illness in Western countries. Over the past 30 years, new treatments have reduced symptom burden, allowing patients to stay in the workforce longer. However, fatigue and cognitive impairments remain major barriers to work capacity. This project aims to examine factors important for work ability and well-being in persons with MS and cognitive impairments. The specific research questions are: 1. How do job type and opportunities for workplace adaptations influence work ability and well-being in individuals with MS and cognitive impairments? 2. What are the associations between cognitive function in MS and work ability as well as well-being? The investigators plan to collect data on patients with MS who have undergone a neuropsychological assessment at the neurology clinic in Region Gävleborg over a five year period. Approximately 100 patients are eligible for participation. Data will be collected through surveys and by extracting information from medical records. The surveys include questions related to well-being and work ability. Data from medical records contain data from the neuropsychological assessment, other rehabilitation interventions as well as data related to treatment and progress of MS. The findings from the study aim to enhance work-oriented rehabilitation and provide a deeper understanding of how to support individuals with MS in maintaining employment and overall well-being
Interventions
None listed
Sponsors
University of Gavle
Region Gävleborg
Study design
Observational model
COHORT
Time perspective
RETROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
18 Years to 65 Years
Healthy volunteers
No
Inclusion criteria
Multiple sclerosis Age between 18-65 Performed a neuropsychological assessment at the Neurology department at Gävle Hospital during the last 5 years (counting from study start) -
Exclusion criteria
Other diagnosis hindering work participation more than MS \-
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Work participation | Baseline | Percentage of full-time work. 100 % full-time work and 0% is not working at all. |
| Hospital anxiety and depression scale (HADS) | Baseline | Self-assessment of anxiety and depression. Consists of two scales measuring the probability of having anxiety and depression respectively. Min score 0, max 21 for each scale. Higher scores indicate higher probability of anxiety/depression. |
| WHO-5 Well-Being Index | Baseline | Overall rating of well-being. The WHO-5 score range is a raw score of 0-25, which is then multiplied by 4 to get a percentage score of 0-100. Higher score indicates higher well-being. |
| Brief index of job satisfaction (BIAJS) | Baseline | The Brief Index of Affective Job Satisfaction (BIAJS) has a score range of 1 to 5 for each of its four items, based on a 5-point Likert scale where 1 is strongly disagree and 5 is strongly agree. The total BIAJS score is the sum of these four items, resulting in a possible range from 4 to 20, with higher scores indicating greater affective job satisfaction. |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Work-life balance | Baseline | Questions from the subscale Quantitative demands of the Copenhagen Psychosocial Questionnaire (COPSOQ-III) related to the demands of work. The COPSOQ-III uses Likert-like scales, and its items are coded with values of 0, 25, 50, 75, and 100 to achieve a 0-100 scale. Higher scores indicate more demands. |
| Can-Work-S | Baseline | Three questions from a questionnaire developed to measure work-life balance after cancer. Each item ranges from 1 to 5 with higher scores indicating worse work-life balance. |
Countries
Sweden
Contacts
Primary ContactNatascha Ekdahl
Outcome results
None listed