Adolescent Cancer, Cancer, Young Adult Cancer
Conditions
Keywords
Adolescent, Young Adult, Cancer, AYA, Questionnaire, Needs assessment
Brief summary
The goal of this observational study is to assess gaps in education about exercise, sexual health, fertility, survivorship, financial issues, interpersonal relationships, and clinical trial participation among adolescents and young adults with cancer. Participants will be asked to complete a series of questionnaires.
Detailed description
This descriptive study aims to assess current needs of adolescents and young adults with cancer. Participants who were diagnosed with cancer between the ages of of 15-39 will be asked to complete questionnaires to provide information on their cancer treatments and follow-up care, fertility preservation, clinical trial participation, emotional health and interpersonal relationships, financial burden, mental health and additional general information (health related, sexual orientation, perceived needs for support, resources, programs and activities).
Interventions
OTHERSurvey using a questionnaire.
Questionnaires regarding cancer treatment and follow-up care, fertility preservation, clinical trial participation, general information (education on health- related topics, gender, and sexual orientation, perceived needs for resources, support areas, programs and activities.), emotional health and interpersonal relationships, financial burden and mental health status.
Sponsors
Wake Forest University Health Sciences
Atrium Health Wake Forest Baptist
National Cancer Institute (NCI)
Study design
Observational model
OTHER
Time perspective
CROSS_SECTIONAL
Eligibility
Sex/Gender
ALL
Age
15 Years to No maximum
Healthy volunteers
No
Inclusion criteria
* Individuals diagnosed with cancer between the ages of 15-39 per self-report. Participants may be enrolled at any age provided diagnosis was between ages 15-39. * Individuals who have received or are receiving cancer-directed treatment (chemotherapy, immunotherapy, surgery and/or radiation) at one of the participating centers per self-report.
Exclusion criteria
* Severe emotional distress or anxiety that would limit compliance with study requirements per self-report.
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Deficits in Education | At study enrollment | The general information survey collects data on participants surrounding education on health-related topics, gender, and sexual orientation, as well as perceived needs for resources, support areas, programs and activities. The general information survey contains 12 items. There is no formal statistical analysis to be performed only summary statistics on completed survey items for observation thus there is no scoring needed or range of scores. Results will be observed using descriptive statistics. Due to the categorical nature of all variables, results will be reported in frequencies and percentages. |
| Preferred Format for Education | At study enrollment | The General Information Survey collects data on participants surrounding education on health-related topics, gender, and sexual orientation, as well as perceived needs for resources, support areas, programs and activities. The general information survey contains 12 items. There is no formal statistical analysis to be performed only summary statistics on completed survey items for observation thus there is no scoring needed or range of scores. Results will be observed using descriptive statistics. Due to the categorical nature of all variables, results will be reported in frequencies and percentages. |
Countries
United States
Contacts
CONTACTAnne Wofford, MD
PRINCIPAL_INVESTIGATORAnne Wofford, MD
Atrium Health Wake Forest Baptist
Outcome results
None listed