Hirschsprung Disease
Conditions
Brief summary
The aim of our study is to investigate the effects of physiotherapy in children with Hirschsprung's disease who have bowel symptoms after surgery.
Detailed description
Hirschsprung's disease is a developmental disorder of the enteric nervous system characterized by the absence of ganglion cells in the distal intestine, resulting in functional intestinal obstruction. The treatment applied after diagnosis is surgical. Although individuals with a history of surgery due to Hirschsprung's disease generally have normal bowel and urinary function, it has been reported that they have a higher prevalence of fecal incontinence and constipation and a lower quality of life related to the gastrointestinal system. However, there are few studies evaluating the use of physiotherapy in the management of postoperative bowel symptoms in children with Hirschsprung's disease.
Interventions
BEHAVIORALPhysiotherapy
The treatment program will include patient education, lifestyle recommendations, breathing exercises, pelvic floor muscle training, and stabilization exercises. The treatment program will last for a total of 8 weeks.
Sponsors
Ankara Yildirim Beyazıt University
Study design
Allocation
NA
Intervention model
SINGLE_GROUP
Primary purpose
TREATMENT
Masking
NONE
Eligibility
Sex/Gender
ALL
Age
5 Years to 18 Years
Healthy volunteers
No
Inclusion criteria
* Children aged 5-18 who have undergone surgery for Hirschsprung's disease and have intestinal symptoms, and who come for routine check-ups. * Volunteering to participate in the study
Exclusion criteria
* Presence of a congenital and/or chronic disease * Those with missing assessment parameters * Having a history of any additional orthopedic, neurological or psychiatric disease that will affect the evaluation parameters * Loss of sensation * Mental retardation
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Bowel function | before and after treatment (8-week change) | Bowel function will be evaluated with a bowel diary. They will be asked to keep a bowel diary for 1 week, including the number and type of daily stools and the number of incontinent stools. |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Constipation | before and after treatment (8-week change) | Children's constipation will be evaluated with the Rome IV criteria. These criteria include; two or less defecation per week, fecal incontinence at least once a week, history of holding/ delaying the large toilet, painful and difficult bowel movements, presence of large feces in the rectum, presence of a history of large feces that can block the toilet. An increase in the number of symptoms indicates the severity of constipation. |
| Pelvic floor muscle function | before and after treatment (8-week change) | Pelvic floor muscle function will be evaluated with palpation form anus. The presence of correct contraction and relaxation of the pelvic floor muscle will be determined. |
| Life quality | before and after treatment (8-week change) | Life quality will be assessed with the Pediatric Quality of Life Inventory (PedsQL). The PedsQL consists of 23 items. It are scored between 0-100. The higher the total score of the life quality, the better health-related life quality is perceived. |
| Perception of improvement | after treatment (8-week change) | Subjective perception of improvement will be assessed as -1 (worse), 0 (no change) and 1 (better). |
| Compliance with recommendations | after treatment (8-week change) | Compliance with post-treatment recommendations will be assessed with the Visual Analog Scale (VAS). The VAS is a horizontal line with 0 at one end as never compliance and '10' at the other end as always compliance. |
Contacts
Primary ContactSeyda Toprak Celenay
Outcome results
None listed