Cultural Adaptation, Medullary Thyroid Cancer (MTC)
Conditions
Brief summary
To find good information about medullary thyroid cancer that is easy to understand and reliable, so researchers aim to design some new educational materials to help.
Detailed description
Primary Objectives 1. To co-develop a culturally-adapted educational tool for the Latino/Latina MTC population using the previously developed MTCEducate.org as a framework. (Phase 1) 2. To test, refine, and produce a culturally adapted educational prototype and is intended to assess participants' understanding after reviewing the decision aid as part of the iterative testing and refinement process (Phase 2) Secondary Objectives 1. To assess the tool's acceptability post-production among a broader population of Latino(a) MTC participants and caregivers using the Ottawa Acceptability Scale (Phase 3) 2. To disseminate the educational tool to a broader population of Latino(a)s 3. To summarize the clinico-demographics of educational tool users
Interventions
OTHERInterviews
* Questionnaires/Survey Measures * Qualitative Instruments
Sponsors
M.D. Anderson Cancer Center
Study design
Observational model
COHORT
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
18 Years to No maximum
Healthy volunteers
No
Inclusion criteria
* Provision of signed and dated informed consent form * Males and females; Age: ≥18 years old * Identified ethnicity as "Hispanic" or "Latino/Latina" * Ability to read, write, and speak Spanish * Those who are pregnant are eligible to participate * Have or will face this decision, including: a. Participant/survivor - who has medullary thyroid carcinoma, as determined by a clinician or documented in Multi-Institutional Medullary Thyroid Cancer Collaborative Registry; b. Caregiver/family member - of Participant/survivor who has medullary thyroid carcinoma, as nominated by the Participant/survivor
Exclusion criteria
* Those \< age 18 * Ethnic identity as non-Hispanic or non-Latino/a individual * Individuals with cognitive or psychological impairment (e.g., depression, anxiety, severe mental illness as documented in the registry
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Questionnaires/Survey Measures | Through study completion; an average of 1 year |
Countries
United States
Contacts
CONTACTElizabeth Grubbs, MD
PRINCIPAL_INVESTIGATORElizabeth Grubbs, MD
eggrubbs@mdanderson.org
Outcome results
None listed