Pediatric Brain Tumors, Sarcoma
Conditions
Keywords
Pediatric, Brain tumor, Registry, Proton radiation, Radiation therapy, Photon radiation
Brief summary
The Johns Hopkins Pediatric Radiation Oncology Program is creating a registry that will capture the full 3D radiation dosimetry delivered to its pediatric patients to manage the quality of care provided, as well as to examine the long-term outcomes and toxicity of each patient. The registry will capture baseline clinical data, disease, toxicity, and quality of life outcomes. The goal is to include all pediatric patients undergoing proton therapy and photon therapy to enable future comparisons of treatment outcomes.
Interventions
None listed
Sponsors
Clark Charitable Foundation Inc.
Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins
Study design
Observational model
COHORT
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
0 Years to 26 Years
Healthy volunteers
No
Inclusion criteria
* Treatment with either proton or photon radiation therapy.
Exclusion criteria
* Greater than 26 years old
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Overall Survival | Approximately 10 years | Measured from date of diagnosis until death, obtained from medical record notes |
| Toxicity due to Radiation Therapy as assessed by number of patients with adverse events | Approximately 10 years | The number of patients that experience adverse events, obtained from medical record notes |
Countries
United States
Contacts
Primary ContactEthan Arnone, BS
Backup ContactBetsy Sawdy, MSN
Outcome results
None listed