Epilepsy
Conditions
Brief summary
Epilepsy affects nearly 600,000 people in France and causes neurological seizures that can lead to lasting impairments and stigma. Physical activity provides many benefits, including improved quality of life, social participation, and reduced stress and seizure frequency. Despite these benefits, people with epilepsy tend to be less active than the general population due to barriers such as fear of seizures during exercise, fatigue, and negative beliefs about the disease. Psychological factors and stigma influence physical activity engagement and affect how the disease is integrated into personal identity, impacting quality of life and treatment adherence. Studying the role of anxiety, stigma, and illness identity, as well as their interaction with physical activity identity, is essential to better understand and promote physical activity among people with epilepsy.
Interventions
BEHAVIORALonline questionnaire
Online questionnaire assessing physical activity level, completed twice at a 6-month interval.
Sponsors
Fondation Ophtalmologique Adolphe de Rothschild
Study design
Observational model
COHORT
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Healthy volunteers
No
Inclusion criteria
* Individuals self-reporting as over 18 years old * Individuals self-reporting having epilepsy
Exclusion criteria
* not having completed secondary questionnaire at 6 months from inclusion
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| maintained physical activity | Day 0 and Month 6 | Physical activity level will be measured using an adapted version of the Modifiable Activity Questionnaire (MAQ) at inclusion and 6 months later as a criterion for behavior maintenance. MAQ ranges starts from 0 with no maximum limit. A higher value means a higher physical activity level. |
Countries
France
Contacts
Primary ContactAmelie Yavchitz, Dr
Outcome results
None listed