Ovarian Cancer
Conditions
Keywords
ovarian cancer, quality of life, cancer survivorship
Brief summary
The goal of this study is to comprehensively measure ongoing concerns and unmet needs of individuals living with ovarian cancer. To accomplish this, the UNderstanding The experience of Ovarian cancer - Life after Diagnosis (UNTOLD) study will be conducted using a mixed-methods approach. Ovarian cancer survivors will be enrolled to participate in UNTOLD to complete a one-time survey regarding their experiences. Up to 40 survivors will be subsequently identified to complete a follow-up interview. To ensure these sample sizes, along with a representative sample, a combined recruitment strategy will be employed using the California Cancer Registry (population-based) and recruitment through ovarian cancer advocacy groups.
Interventions
None listed
Sponsors
Masonic Cancer Center, University of Minnesota
Centers for Disease Control and Prevention
Study design
Observational model
OTHER
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
FEMALE
Age
18 Years to No maximum
Healthy volunteers
No
Inclusion criteria
* Ability to read and write in English * Diagnosed with ovarian cancer (ovarian, primary peritoneal, fallopian tube)
Exclusion criteria
\-
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Supportive Care Needs | Day 1 | Composite Supportive Care Needs Survey - Short Form (SCNS-SF34) score minimum: 34, maximum: 170; continuous score; presented as mean and standard deviation. |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Quality of Life - Average FACT general total score | Day 1 | FACT-General total score minimum 0, maximum 108; continuous score; presented as mean and standard deviation |
Countries
United States
Contacts
CONTACTRachel Vogel, PhD
Outcome results
None listed