Caregivers, Heart Defects, Congenital, Medical Staff, Hospital, Preschool Child, Qualitative Research, Rehabilitation
Conditions
Keywords
congenital heart disease, home-based cardiac rehabilitation, Primary caregiver, qualitative research, preschool child
Brief summary
This part of the study focuses on understanding the home rehabilitation situation for preschool children with congenital heart disease after operation. Qualitative research interviews with caregivers and medical staff (including doctors, nurses, rehabilitation therapists, nutritionists, and psychologists) are conducted to explore the benefits, obstacles, and professional guidance needs of home rehabilitation. The aim is to summarize the best evidence for home rehabilitation through evidence-based nursing and qualitative research, in order to develop a more comprehensive and suitable home rehabilitation scheme for these children.
Interventions
None listed
Sponsors
Wei XIA, PhD
Study design
Observational model
OTHER
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
3 Years to No maximum
Healthy volunteers
Yes
Inclusion criteria
Children With Congenital Heart Disease After Surgery Inclusion Criteria: * Age 3 to 7 years * Clinical diagnosis of congenital heart disease * Underwent a single open-heart surgical correction under direct vision at the study site * Ability to communicate in Chinese
Exclusion criteria
* Postoperative arrhythmia * Comorbid neurological, respiratory, or other systemic diseases * Deemed unsuitable for exercise by a physician * Cardiac function classified as NYHA Class IV * Intellectual, language, or motor impairments resulting from perioperative complications or other causes Caregivers of Children With Congenital Heart Disease After Surgery Inclusion Criteria: * Primary caregiver who voluntarily provides care * Caregiver who spends the most time with the child * Ability to communicate in Chinese
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Number of Core Components Finalized in the Home Rehabilitation Scheme Based on Expert Consensus | 12 months (from initiation to completion of scheme development) | The home rehabilitation scheme will be developed using a two-round Delphi method with a multidisciplinary expert panel. Each proposed module will be rated by experts for its relevance, feasibility, and clarity. Components reaching ≥75% agreement (rated as agree or strongly agree) will be considered finalized. The outcome will be reported as the number and percentage of components finalized out of all proposed components. |
Countries
China
Contacts
Primary ContactXia Wei, PhD
Backup ContactLuo Cong, Master
Outcome results
None listed