Dementia
Conditions
Keywords
Caregiver, Dementia, Person living with dementia
Brief summary
This study will assess the preliminary efficacy of a synchronous/asynchronous psychoeducation program designed to promote caregiving mastery in the immediate time period after a dementia diagnosis. It will also study the effects on caregiver and care recipient well-being.
Detailed description
The Caregiver Bootcamp program will employ psychoeducational methods (expert instruction, expectation of active learning by participants, debriefing and coaching linked to participant reports of application of strategies and principles) to enhance the proposed mechanism of action of the intervention, the enhancement of caregiving mastery - the individual's self-acknowledgement of self-efficacy for coping with the stresses of the new caregiving role. The program is meant to provide basic orientation to the situation: recognize the reality of the condition; understand the shifts in mindset that the immediate situation demands; begin to recognize the shift in responsibility that will have to occur; and take practical steps to prepare for the future. The program will combine 5 weekly small group 90-120-minute online sessions with asynchronous instructional materials delivered 2-4 days in between sessions.
Interventions
OTHERSynchronous/asynchronous online course
* Synchronous weekly 90-120-minute-long sessions that will be conducted on a videoconferencing platform (i.e., Zoom). If participants miss a synchronous session. * Asynchronous online course: available segments of the online course with asynchronous instructional materials delivered 2-4 days in between sessions, and supplemental course materials that will be received by mail.
Sponsors
Emory University
National Institute on Aging (NIA)
Study design
Allocation
NA
Intervention model
SINGLE_GROUP
Primary purpose
SUPPORTIVE_CARE
Masking
NONE
Intervention model description
The investigators will enroll caregivers in six cohorts of 8 each to participate in this Stage Ib clinical trial.
Eligibility
Sex/Gender
ALL
Age
21 Years to No maximum
Healthy volunteers
No
Inclusion criteria
1. over the age of 21; 2. care partner/caregiver for a family or friend who has received a diagnosis of a form dementia from a healthcare provider in the last 6 months; 3. has access to an electronic device and/or access to broadband internet; and 4. able to speak and understand English. Caregivers are not required to be co-located with the care recipient.
Exclusion criteria
* considering moving the PLWD to an institutional setting within the next 6 months.
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Change in caregiver sense of mastery | Baseline, 1 and 3-months post-intervention | The seven-item personal mastery scale developed by Pearlin and Schooler is used to measure mastery. All items are rated on a four-point scale: 1 = strongly agree; 2 = agree; 3 = disagree; to 4 = strongly disagree. Total scores ranged from 7 to 28, with higher scores indicating higher levels of mastery. |
| Change in caregiver self-efficacy: symptom management scale | Baseline, 1 and 3-months post-intervention | This outcome will be assessed with Likert scale questions. Includes 6 questions, each scored on a 0-10 scale. Total possible score range is 0-60, with higher score correlating with better study outcome. |
| Change in caregiver self-efficacy: support services scale | Baseline, 1 and 3-months post-intervention | This outcome will be assessed with Likert scale questions. Includes 4 questions, each scored on a 0-10 scale. Total possible score range is 0-40, with higher score correlating with better study outcome. |
| Change in caregiver self-efficacy: medication management scale | Baseline, 1 and 3-months post-intervention | This outcome will be assessed with Likert scale questions. Includes 5 questions, each scored on a 0-10 scale. Total possible score range is 0-50, with higher score correlating with better study outcome. |
Countries
United States
Contacts
PRINCIPAL_INVESTIGATORCarolyn Clevenger, RN, DNP
Emory University
Outcome results
None listed