HIV
Conditions
Keywords
HIV stigma, discrimination
Brief summary
Question-order effect experiment to measure HIV-related stigma among people living with HIV (PWH).
Detailed description
HIV-related stigma is a barrier to engagement in HIV prevention and treatment. Given the negative impact of stigma on the HIV continuum of care, accurate assessment of HIV-related stigma among people living with HIV (PWH) in resource-limited settings is paramount. The purpose of this study is to conduct a question order experiment to assess the extent to which the order of presented questions affects measurement of HIV-related stigma.
Interventions
OTHERSurvey questionnaire V1
Each version of the questionnaire includes a different order of statements about which study participants are asked to provide a Yes, No, or It depends response.
OTHERSurvey questionnaire V2
Each version of the questionnaire includes a different order of statements about which study participants are asked to provide a Yes, No, or It depends response.
Sponsors
Massachusetts General Hospital
Mbarara University of Science and Technology
National Institute of Mental Health (NIMH)
Study design
Allocation
RANDOMIZED
Intervention model
PARALLEL
Primary purpose
OTHER
Masking
SINGLE (Subject)
Eligibility
Sex/Gender
ALL
Age
18 Years to No maximum
Healthy volunteers
No
Inclusion criteria
\- All HIV-positive (self-reported) adults who consider Nyakabare their primary place of residence and who are capable of providing consent
Exclusion criteria
* Minors younger than 18 years of age, with the exception of emancipated minors * Persons who do not consider Nyakabare Parish their primary place of residence, e.g. persons who happen to be visiting Nyakabare at the time of the survey or who own a home in Nyakabare but spend most of their time outside of the parish * Persons with psychosis, neurological damage, acute intoxication, or other cognitive impairment (all of which are determined informally in the field by non-clinical research staff in consultation with a supervisor) * Persons who are not HIV positive
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Self-esteem | Baseline (assessed at the time the survey is administered) | ...do you think less of yourself because of your HIV status? (single item) |
| Self-respect | Baseline (assessed at the time the survey is administered) | ...have you felt ashamed because of your HIV status? (single item) |
| Experiences of harassment due to HV status | Baseline (assessed at the time the survey is administered) | * have you lost respect or standing in the community because of your HIV status? * have people talked badly about you because of your HIV status? * have you been verbally insulted, harassed and/or threatened because of your HIV status? * have you been physically assaulted because of your HIV status? * has someone else disclosed your HIV status without your permission? * have you felt that people have not wanted to sit next to you, for example on public transport, at church or in the waiting room, because of your HIV status? (six items) |
Countries
Uganda
Contacts
PRINCIPAL_INVESTIGATORAlexander C Tsai, MD, PhD
Massachusetts General Hospital
Outcome results
None listed