Parkinson Disease (PD), Self-Care Ability
Conditions
Keywords
malattia di parkinson, self-care, nurse
Brief summary
This descriptive observational study will involve dyads of Parkinson Disease patients and their caregivers. Participants will be recruited from the Parkinson's Disease and Movement Disorders Centre of ASST Gaetano Pini-CTO. Validated questionnaires, such as the WHOQOL-Bref, the Self-care of Chronic Illness Inventory version 2, and the Caregiver Self-efficacy in Contributing to Self-care Scale, will be administered. The study will also include semi-structured interviews to gather qualitative data on the patients' and caregivers' perceptions of self-care. A non-probabilistic convenience sampling method will be used, with the inclusion of both patients at any disease stage and their primary caregivers. The sample size will range 311 dyads with 5% margin of error.
Detailed description
The primary objective of this study is to describe the proportion of self-care maintenance in the population with Parkinson's Disease and their respective caregivers. Gaining an in-depth understanding of the phenomenon in its experiential and perceptual components, as well as the meanings attributed to it, is essential for developing and validating a new tool capable of assessing and measuring self-care in Parkinson's Disease. The secondary objectives are (a) to describe the proportions of self-care monitoring and management in the population with Parkinson's Disease and their respective caregivers; (b) to explore the meaning attributed by patients with Parkinson's Disease to self-care in its three dimensions: self-care maintenance, monitoring, and management; (c) to describe the attitudes and self-care behaviours adopted by patients with Parkinson's Disease across different disease stages; (d) to explore the meaning attributed by caregivers of patients with Parkinson's Disease to self-care in its three dimensions: self-care maintenance, monitoring, and management; (e) to describe the attitudes and self-care behaviours adopted by caregivers of patients with Parkinson's Disease across different disease stages; (f) to identify the dimensions of self-care and the constructs that should be represented within the items of the new instrument, the Parkinson's Disease Self-care Questionnaire (PDSC-Q).
Interventions
None listed
Sponsors
Giovanni Muttillo
Study design
Observational model
OTHER
Time perspective
CROSS_SECTIONAL
Eligibility
Sex/Gender
ALL
Healthy volunteers
No
Inclusion criteria
* Spatial-temporal orientation * Identifying as the primary caregiver of the person * Understanding of the Italian language * Consent to participate in the study * Informal caregiver
Exclusion criteria
* Secondary forms of Parkinson's Disease * Subjects with cognitive impairments, assessed with the Mini Mental State Examination; score lower than 24/30 Subjects who do not understand written and spoken Italian Subjects who did not provide consent to participate in the study
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Self-care | Baseline | Self Care of Chronic Illness Inventory versione 2 |
| Self-care caregiver | Baseline | Caregiver Self-efficacy in Contributing to self-care scale (CSE-CSC) |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Perception of quality of life | Baseline | WHOQOL-BREF |
Contacts
Primary ContactGiovanni Muttillo, Director
Outcome results
None listed