Cancer
Conditions
Keywords
Peer support, Cancer, participatory research, Patient advisor
Brief summary
Peer support is a valuable mode of accompaniment between individuals who are facing or have faced similar challenging life experiences. In this context, a patient advisor (PA) shares their experiential knowledge, derived from living with a disease, to offer emotional, experiential, and informational support to other patients. This PA intervention represents an innovative form of support for oncology patients, potentially addressing their needs more comprehensively throughout the care pathway by integrating psychosocial dimensions into the support approach. The present pilot study aims to investigate the implementation and effectiveness of the peer-to-peer support program PaRole OncO France in the oncology setting. The study will focus on: 1. Evaluating clinical and psychosocial parameters 2. Utilizing an in-depth multiple case study approach This research seeks to provide insights into how peer support can enhance the overall care experience for oncology patients, potentially leading to improved patient outcomes and a more holistic approach to cancer care.
Detailed description
Peer support is a valuable mode of accompaniment between individuals who are facing or have faced similar challenging life experiences. In this context, a patient advisor (PA) shares their experiential knowledge, derived from living with a disease, to offer emotional, experiential, and informational support to other patients. This PA intervention represents an innovative form of support for oncology patients, potentially addressing their needs more comprehensively throughout the care pathway by integrating psychosocial dimensions into the support approach. The present pilot study aims to investigate the implementation and effectiveness of the peer-to-peer support program PaRole OncO France in the oncology setting. The study will focus on: 1. Evaluating clinical and psychosocial parameters 2. Utilizing an in-depth multiple case study approach This research seeks to provide insights into how peer support can enhance the overall care experience for oncology patients, potentially leading to improved patient outcomes and a more holistic approach to cancer care.
Interventions
BEHAVIORALPaRole OncO France : Individual peer support
Following the development of the peer support program PaRole OncO France, we are now proceeding with its implementation and evaluation through a pilot study. This study aims to derive both implementation-related and clinically relevant results. Prior to their assignment, all peer helpers undergo a comprehensive training course to ensure they are well-equipped for their role. Patients receive individual peer support during their treatment visits, providing real-time assistance and support within the clinical setting. The study incorporates three key measurement time points: 1. Baseline measurement (before the intervention) 2. After the intervention 3. Follow-up measurement (1months after the first intervention) 4. Follow-up measurement (6 months after the first intervention) At each time points, participants will complete a set of standardized questionnaires. These instruments are designed to capture relevant outcomes and experiences related to the peer support intervention.
Sponsors
Hospices Civils de Lyon
Study design
Allocation
NA
Intervention model
SINGLE_GROUP
Primary purpose
SUPPORTIVE_CARE
Masking
NONE
Intervention model description
The intervention consists of patient accompaniment by patient advisors. At least one patient advisor is recruited in each service participating in the study. Patients will be paired with patient advisor and can benefit from accompaniment during their hospital stays or remotely (by phone). The patient advisor will, in turn, be supported by the healthcare professionals' team as well as through a community of practice.
Eligibility
Sex/Gender
ALL
Age
15 Years to No maximum
Healthy volunteers
No
Inclusion criteria
* Patient participants : * Patients with newly diagnosed or recurrent cancer (urological, digestive, mammary, pulmonary, ORL, peritoneal carcinosis, melanoma, oncohaematology) * French-speaking patients * Patients adivsors : * Patient advisors will be past cancer patients not currently undergoing treatment for their cancer, and considered without evidence of disease * French-speaking patients
Exclusion criteria
* Patients participants : * Not followed in one of the participating units * Persons deprived of their liberty by judicial or administrative decision * Persons not affiliated to a social security scheme or beneficiaries of a similar scheme * Patient advisors : * Recurrence of the disease * Currently undergoing treatment for active cancer
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Feasibility of implementation of the Peer Support Program in Oncology | 30 months | Acceptability of PH intervention by patients, professionals, and PAs Number of PHs integrated per unit Maintenance of PH activity during the study period in each unit Primary outcome measure is multidimensional by design, as the evaluation of a peer support program requires simultaneous analysis of complementary aspects (acceptability, feasibility, fidelity). These elements are inherently interconnected within our methodological framework. |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Evolution of quality of life | Baseline | EORTC QLQ-C30 questionnaire(Min : 0 ; Max : 100).Higher scores indicate better health status and quality of life |
| Evolution of patient-perceived care experience | Baseline | Picker Patient Experience questionnaire(Min : 0 ; Max : 100).Higher scores indicate a better patient experience and greater satisfaction. |
| Evolution of stress levels | Baseline | Hospital Anxiety and Depression Scale (Min: 0; Max: 42). Higher scores indicate levels of anxiety and depression |
| Evolution of relationship between accompanied patients and healthcare professionals | Baseline;1 month and 6 month after intervention | CADICEE questionnaire(Min :0 ; Max : 100). Higher scores indicate a better perception of patient-healthcare partnership |
| Evolution of quality of life of patient advisors | Baseline, 1month, 6 month | SF-12 questionnaire(Min :0 ; Max : 100)Higher scores indicate better health-related quality of life. |
| Patient empowerment | Baseline | CASE-cancer questionnaire(Min :0 ; Max : 100). Higher scores indicate greater self-efficacy in managing cancer. |
Countries
France
Contacts
Primary ContactJuile HASEBAERT, PhD
Backup ContactAnne TERMOZ
Outcome results
None listed