Stillbirth and Fetal Death, Miscarriages, Experience
Conditions
Keywords
Pregnancy loss, Child loss, Qualitative research, Mixed-methods, Experience, Need, Parents, Perinatal loss, Fetal death, Miscarriage, Stillbirth
Brief summary
The investigators are conducting a participatory study with and for parents after child loss during pregnancy or birth. Their aim is to develop treatment recommendations for healthcare professional. These focus on question, how to deal with parents when experiencing child loss.
Detailed description
The entire study is following a participatory approach and including parents after stillbirth in the research team. Along a co-creative design, the investigators planned a multistep-explorative mixed-methods study. In detail, three key steps will be conducted. First, workshops and focus groups will be carried out to identify central needs of affected parents. Afterwards, one investigator will interview the parents narratively to gain an in-depth understanding of their experiencs. Finally, these findings will be summarized and translated into treatment recommendations for healthcare professionals.
Interventions
OTHERWorkshops
The investigators will conduct workshops with parents to get closer to the main topic.
The investigators will conduct focus group interviews with parents on their needs before and during child loss.
OTHERNarrative interviews
The investigators will conduct narrative interviews with parents to gain an in-depth understanding of their lived experience before and during the intrauterine or perinatal child loss.
OTHERDelphi approach
The investigators will carry out a Delphi approach with parents to translate and confirm or revise the findings into treatment recommendations for healthcare professionals.
Sponsors
Fritz Sterr
Study design
Observational model
OTHER
Time perspective
OTHER
Eligibility
Sex/Gender
ALL
Age
18 Years to No maximum
Healthy volunteers
No
Inclusion criteria
* German speaking * Living in Austria, Germany or Switzerland * Child loss during pregnancy or birth * Child loss within last 12 months * Legal capacity * Voluntary participation
Exclusion criteria
* Loss of child after birth * Not speaking and understanding German * Not in a good mental condition to participate
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Parent's experience | During pregnancy and up to 7 days after birth | The investigators are interested in parents' in-depth and lived experience before and during their intrauterine or perinatal child loss. |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Parents' subjective needs | During pregnancy and up to 7 days after birth | In qualitative interviews, the subjective needs that parents developed before and during their intrauterine or perinatal child loss will be investigated. |
Countries
Germany
Contacts
Primary ContactFritz Sterr, M.Sc.
Backup ContactJulian Siepmann, M.Sc.
Outcome results
None listed