COPD (Chronic Obstructive Pulmonary Disease)
Conditions
Keywords
asynchronous, whole health support, website based intervention, implementation, access to whole health care
Brief summary
Narrative-based tiered asynchronous psychosocial and behavioral whole health support for people adjusting to living with COPD. The intervention is administered by experienced LCSWs under the PI's supervision.
Detailed description
This study will advance health access equity for people with Chronic Obstructive Pulmonary Disease (COPD) by providing an asynchronous, patient-led, web-based, adaptive, flexible, and tiered intervention that easily integrates into the daily lives of both providers and patients living with COPD. This intervention includes health navigation education, health and behavior coaching, and narrative, strengths-based mental and behavioral health support. COPD is a complex chronic illness with multiple domains to study whole person support. Not only because of the significant impact of a lack of whole person support for people living with COPD but also because COPD shares many of the same symptomology and impact on daily living as other significant chronic illnesses such as heart failure, some neurological disorders, and some types of cancer (5-7). The lessons learned from studying COPD whole person support can be applied to other similar symptomatic burdensome chronic illnesses that also suffer from fragmented care.
Interventions
BEHAVIORALTiered whole health support for people living with COPD
The website design allows study participants to choose the intervention tier(s) that meets their needs. There are three tiers from Tier 1: Information only, Tier 2 Reflective Writing, and Tier 3 LCSW Psychotherapeutic Intervention. Participants will also be able to choose multiple tiers if they are interested in continuing their participation. First Tier: The website offers standardized information about COPD care, healthcare navigation, and whole-person care. Information includes symptom management, disease progression and trajectory, healthcare navigation concepts, and directs people to the VA website with information about whole-person care. Second Tier: If participants choose, they can also select writing prompts with opportunities to reflect on their whole-person care and adjustment to illness. Third Tier: People living with COPD can also select to have asynchronous interaction with a licensed clinical social worker providing the narrative-based psychotherapeutic intervention.
Sponsors
University of Colorado, Denver
Study design
Allocation
NA
Intervention model
SINGLE_GROUP
Primary purpose
HEALTH_SERVICES_RESEARCH
Masking
NONE
Masking description
Participants will choose which tier of the intervention that they are interested in accessing. Care providers will be notified about which services are accessed.
Eligibility
Sex/Gender
ALL
Age
18 Years to 89 Years
Healthy volunteers
No
Inclusion criteria
* Has access to the internet once per week * Has been diagnosed with COPD and is being seen at the ECHCS VA Medical Center or the University of Colorado Pulmonology clinics
Exclusion criteria
* Not in a conflicting research study
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Personal Health Questionnaire- 9 item (PHQ9) | 0 months, 3 months | The PHQ9 is a standardized, validated measurement used to track depression in both clinical and research settings. |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Generalized Anxiety Disorder-7 items (GAD7) | 0 months, 3 months | The GAD7 is an established, validated measurement of anxiety in clinical and research settings. |
Other
| Measure | Time frame | Description |
|---|---|---|
| St George Respiratory Questionnaire (SGRQ) | 0 months, 3 months | The SGRQ is an established and validated respiratory distress measurement for people with COPD in both clinical and research settings. |
Countries
United States
Contacts
Primary ContactRachel Johnson, PhD, LCSW
Outcome results
None listed