Cholestatic Genetic Diseases, Hepatitis Autoimmune Disease, Primary Biliary Cholangitis (PBC), Primary Sclerosing Cholangitis (PSC)
Conditions
Keywords
Cholestatic Genetic Diseases, Primary Sclerosing Cholangitis (PSC), Hepatitis Autoimmune Disease, Primary Biliary Cholangitis (PBC), PFIC tipo 1, PFIC tipo 2, PFIC tipo 3, PFIC tipo 4, BRIC tipo 1, BRIC tipo 2, Alagille syndrome, Rotor syndrome, Dubin Johnson syndrome, Genetic disease, Registry, cholestatic diseases
Brief summary
The purpose of the registry is to know the status of primary biliary colgantis, autoimmune hepatitis, primary sclerosing cholagitis and genetic cholestatic diseases in Spain.
Interventions
None listed
Sponsors
Asociación Española para el Estudio del Hígado
Study design
Observational model
COHORT
Time perspective
OTHER
Eligibility
Sex/Gender
ALL
Age
18 Years to No maximum
Healthy volunteers
No
Inclusion criteria
* Patients with a confirmed diagnosis for PBC, HAI, PSC, genetic cholestatic disease
Exclusion criteria
* Refusal to sign the informed consent for the study
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Prevalence and characteristics of autoimmune and cholestatic liver disease in Spain | 2025 | Evaluation of clinical characteristics of autoimmune and cholestatic liver diseases |
Secondary
| Measure | Time frame |
|---|---|
| Development of liver-related events in autoimmune ahd cholestatic liver diseases | 2025 |
| Treatment of autoimmune and cholestatic liver diseases in Spain | 2016-2030 |
Countries
Spain
Contacts
Primary ContactAsociación Española para el Estudio del Hígado Asociación Espa
Outcome results
None listed