Registry Study on Rare Cancers in Korea

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

ClinicalTrials.gov

Registry ID

NCT06746766

Acronym

rarecancer

Enrollment

500

Registered

2024-12-24

Start date

2024-11-18

Completion date

2027-12-01

Last updated

2026-04-30

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Rare Cancer

Keywords

Rare Cancer

Brief summary

This study aims to determine the participation rate of patients with registered rare cancers in clinical research.

Detailed description

Data collection includes: * Clinical characteristics (diagnosis, treatment information, primary/metastatic sites, staging, gender/age) * Survival information (diagnosis date, recurrence date, death date, disease progression) * Pathological information (diagnosis, genomic information)

Interventions

None listed

Study design

Observational model

OTHER

Time perspective

PROSPECTIVE

Eligibility

Sex/Gender

ALL

Age

19 Years to No maximum

Healthy volunteers

Inclusion criteria

* Adults aged ≥19 years * Confirmed rare cancer * Life expectancy ≥3 months

Exclusion criteria

-Serious or unstable medical/psychiatric conditions

Design outcomes

Primary

Measure	Time frame	Description
Establish a registry	1 year	Establish a registry of rare cancer patients visiting the institution

Secondary

Measure	Time frame	Description
Clinical trial registration rate (%)	1 year	Clinical trial registration rate (%)

Countries

South Korea

Contacts

CONTACTHyo Song Kim, MD, Ph.D

hyosong77@yuhs.ac82-2-2228-8124

PRINCIPAL_INVESTIGATORHyo Song Kim, MD, Ph.D

Yonsei Cencer center

Outcome results