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Neurodevelopmental Disorder Diagnosis During Adulthood

Descriptive Study of Adult Patients Diagnosed Later with a Neurodevelopmental Disorder and Their Management

Status
Recruiting
Phases
Unknown
Study type
Observational
Source
ClinicalTrials.gov
Registry ID
NCT06691048
Acronym
NeuroDevAD
Enrollment
300
Registered
2024-11-15
Start date
2024-01-08
Completion date
2024-12-01
Last updated
2024-11-15

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Neurodevelopmental Disorders

Keywords

Neurodevelopmental Disorders, Late diagnosis, Adult

Brief summary

The prevalence of neurodevelopmental disorders (specific learning disorders: dyslexia, dysorthographia, dysgraphia and dyscalculia; communication disorders; developmental coordination disorders; attention deficit disorder with or without hyperactivity (ADHD); intellectual disability (ID) and autism spectrum disorders) in the general population is very high, representing over 15% of the paediatric population. Among this population, between 40% and 90% remain symptomatic into adulthood. In addition to the part of the population diagnosed in childhood and lost to the transition to adulthood, a significant part of this population remains unidentified and therefore untreated (up to 60%). It is in adulthood that the diagnosis of neurodevelopmental disorders must be identified as being at the origin of at least some of the cognitive dysfunctions observed: failure at school, difficulties in socio-professional integration... Thus, the lifelong care diagnostic pathway needs to be developed both from an organizational point of view and in terms of the scientific knowledge required to best organize a personalized health pathway for this population. The current challenge for this population is to offer a structured care pathway, from diagnosis to care and medico-social integration. This project will provide comprehensive, homogeneous data for cohorts of patients requiring diagnostic advice and lifelong management of their disorders. Thesecomprehensive data will contribute to scientific publications on patient cohorts. At present, very few centers have complete, homogeneous data on late-diagnosis adults, so our project will have a scientific and academic impact in its own right.

Interventions

OTHERDescription of an adult population diagnosed late with a neurodevelopmental disorder

Clinical description during diagnostic interview

Sponsors

Hospices Civils de Lyon
Lead SponsorOTHER

Study design

Observational model
COHORT
Time perspective
RETROSPECTIVE

Eligibility

Sex/Gender
ALL
Age
18 Years to 55 Years
Healthy volunteers
No

Inclusion criteria

* Men or women aged 18 or over * Men or women under 55 years of age * Patients with a neurodevelopmental disorder according to the latest DSM5 criteria diagnosed after age 18 * Patient with sufficient visual and auditory skills, oral and written language in French accessible to clinical and neuropsychological evaluation.

Exclusion criteria

* Patients with intellectual disabilities * Patients with serious addictive and/or psychiatric comorbidities

Design outcomes

Primary

MeasureTime frameDescription
Clinical Characteristics in Late-Diagnosed Adults with Neurodevelopmental DisordersAt the inclusionSocial Data: Number of participants with specified social characteristics (e.g., employment status, living arrangements, education level).

Countries

France

Outcome results

None listed

Source: ClinicalTrials.gov · Data processed: Feb 4, 2026