Disorders of Consciousness
Conditions
Keywords
Disorders of Consciousness, Decision making
Brief summary
Critical ethnography exploring how decisions are made on behalf of people in disorder of consciousness (DOC). Prospective longitudinal case study design including observation, field interview and video reflexive ethnography.
Interventions
OTHERObservation
case study will be observed participants, methods will include observation, interview and video reflexive ethnography
Sponsors
Royal Hospital for Neuro-disability
University of Nottingham
Study design
Observational model
CASE_ONLY
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
18 Years to No maximum
Healthy volunteers
Yes
Inclusion criteria
* People in a DOC: * Working diagnosis of being in a DOC. * Have an appropriate family member able to act as a consultee. * Over 18 years of age. Family members and healthcare workers: * conversational English. * able to give consent. * over 18 years of age. * Involved in decision making on behalf of a person in a DOC
Exclusion criteria
Person in a Disorder of Consciousness * Not in a DOC, diagnosis uncertain, or appears to be emerging. * Clinically unstable or approaching the end of their life.
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Meaning based themes on what influences decision making in DOC | 2 years | Thematic analysis (TA) will consolidate and develop themes across all data sources (i.e., interview and VRE transcripts, field notes). The planned TA approach will borrow theory from reflexive thematic analysis (Braun & Clarke, 2022) and a critical realist TA approach which supports causal explanation development (Fryer, 2022). Causal research questions will be developed and refined throughout data collection and explored through TA. |
Countries
United Kingdom
Contacts
Primary ContactTeresa Clark, PhD Candidate UON
Backup ContactAlison Edgley
Outcome results
None listed