AYA Cancer Patients, AYA Cancer Survivors
Conditions
Brief summary
The study aims to describe unmet needs of Adolescent & Young Adults (AYA) with gastrointestinal and breast cancers in relation to: a) quality of life, b) education, c) finances and Insurance, and d) childbearing and parenting in Europe
Detailed description
An electronic online questionnaire was developed addressing four main areas: a) quality of life, b) education, c) finances and Insurance, and d) childbearing and parenting. In brief, the first part of the questionnaire will aim to examine the demographic characteristics of the participants, such as their nationality, gender, age at diagnosis, actual age, and level of education, followed by their diagnosis or condition. No clinical data will be collected other than these features. Then, each domain will include 10 questions (multiple choice questions, ranking questions and 7-point Likert scale questions) and investigate the unmet needs in AYA with gastrointestinal and breast cancers.
Interventions
None listed
Sponsors
Fondazione Policlinico Universitario Agostino Gemelli IRCCS
Study design
Observational model
OTHER
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
18 Years to No maximum
Healthy volunteers
No
Inclusion criteria
* Age: 18 years old at survey participation, as long as aged 13-39 years old at diagnois; * Gastrointestinal cancer (colorectal, gastric, pancreatic) or breast cancer.
Exclusion criteria
* Age: 18 years old at survey participation; * Patients 13 - 39 years old at diagnosis; * Hematologic malignancies or different cancers.
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| AYA Quality of life (QoL) | From answering to the end of the survey after 15 minutes | Assessed by the EQ-5D-5L index and the descriptive statistic of the unmet needs in relation to the 4 domains of investigation, : a) quality of life, b) education, c) finances and Insurance, and d) childbearing and parenting |
| AYA Education | From answering to the end of the survey after 15 minutes | Assessed by the descriptive statistic of the unmet needs obtained from the survey in relation to the 4 domains of investigation. |
| AYA Finances and Insurance | From answering to the end of the survey after 15 minutes | Assessed by the descriptive statistic of the unmet needs obtained from the survey in relation to the 4 domains of investigation. |
| AYA Childbearing and Parenting | From answering to the end of the survey after 15 minutes | Assessed by the descriptive statistic of the unmet needs obtained from the survey in relation to the 4 domains of investigation. |
Countries
Italy
Contacts
Primary ContactLaura Lorenzon, MD
Outcome results
None listed