Cardiovascular Diseases, Central Nervous System Diseases, Health, Subjective, Stroke
Conditions
Keywords
ICF, Survey, Stroke, Health, Functioning, Work, Inclusion, Health and social services
Brief summary
The purpose of the Health, functioning, work, and experiences of social and health services of persons with stroke study (FinPostStroke) is to identify factors related to self-reported health, functioning, work, inclusion, and accessibility of social and health services, and how such factors are interconnected in Finnish adults several years after stroke. Participants will be targeted from hospital registries and recruited by postal mail. This cross-sectional explorative observational study is based on register data and postal survey. The survey questionnaire includes several valid patient-reported outcome measures. The study will provide useful information for developing social and health services for people several years after stroke.
Detailed description
The purpose of the Health, functioning, work, and experiences of social and health services of persons with stroke (FinPostStroke) study is to identify factors related to self-reported health, functioning, work, inclusion, and accessibility of social and health services, and how such factors are interconnected in Finnish adults several years after stroke. The International Classification of Functioning, Disability and Health (ICF) is used as a structured framework. Adults with ischemic stroke, subarachnoid hemorrhage, or intracerebral hemorrhage will be targeted from Kuopio and Helsinki University Hospitals' patient registries. The survey data is planned to be collected with postal questionnaire by May 2026. The questionnaire includes several valid patient-reported outcome measures to assess health and functioning, work and income, inclusion, and social and health services. Participants will be recruited by postal mail with an invitation letter and study information attached to the questionnaire. All participants are expected to give written informed consent prior to the study. The study will provide useful information for developing social and health services for people several years after stroke. We plan to publish at least four peer-reviewed articles along with common articles and texts concerning self-reported health, functioning, work, inclusion, and accessibility of social and health services among Finnish adults with stroke.
Interventions
OTHERno intervention
no intervention
Sponsors
The Finnish Association of People with Physical Disabilities
Hospital District of Helsinki and Uusimaa
Wellbeing Services County of North Savo
Study design
Observational model
OTHER
Time perspective
CROSS_SECTIONAL
Eligibility
Sex/Gender
ALL
Age
18 Years to No maximum
Healthy volunteers
No
Inclusion criteria
* treated for acute stroke (ICD-10 codes I60-61, I63-64) in North Savo or Uusimaa region of Finland between January 2020 and December 2022 * lives currently in North Savo or Uusimaa region of Finland * 18 years or older at the time of stroke
Exclusion criteria
* missing address * deceased
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| PROMIS® Global Health | 7 days | The Patient-Reported Outcomes Measurement Information System (PROMIS®) Global Health consists of 10 items with 5-point rating scale. It is used to assess overall health, physical health, mental health, social health, fatigue, and pain. |
| 12-item WHODAS 2.0 | 30 days | The 12-item World Health Organization Disability Schedule 2.0 (WHODAS) measures functioning. It consists of 12 items with 5-point rating scale (0-4), sum score ranging from 0 to 48. Higher score means more disability. It is used to assess cognition, mobility, self-care, getting along, life activities, and participation. |
| EQ-5D-5L | Baseline | The EQ-5D-5L is a self-reported instrument measuring health status. It consists five dimensions: mobility, self-care, usual activities, pain/discomfort, and anxiety/depression, that are evaluated through five statements/levels. The digits for the five dimensions can be combined into a 5-digit number that describes the patient's health state (5-digit health state profile) that represents the level of reported problems on each of the five dimensions of health. In addition, EQ-5D uses Visual analogue Scale (VAS) for "We would like to know how good or bad your health is TODAY". |
| Experiences of Social Inclusion Scale, ESIS | Baseline | Experiences of Social Inclusion Scale (ESIS) consists of 10 claims with 5-point Likert scale (1-5). The sum score of 10-50 is converted to a scale of 0 to 100. Higher score means stronger experience of inclusion. It is used to assess the experience of meaningfulness, belief in action possibilities and the perceived quality of social interaction. |
| Health and social services | 1 year | "Health and social services" consists of 24 semistructured questions about health and social services chosen from the National Health Finland Survey. |
| Work and income | 30 days | "Work and income" consists of 14 semistructured questions about work and income chosen from the International Spinal Cord Injury Survey. |
Countries
Finland
Contacts
PRINCIPAL_INVESTIGATORSinikka Hiekkala, Docent
The Finnish Association of People with Physical Disabilities
Outcome results
None listed