Severe Mental Disorder
Conditions
Keywords
Peer specialists, Decision Support Techniques, Young Adult
Brief summary
The purpose of this study is to pilot test a peer-delivered decision support intervention (peer decision coaching) designed to enhance decision-making about community participation among young adults with serious mental illness (SMI).
Detailed description
The overarching goal of this study is to pilot test a peer-delivered decision support intervention (peer decision coaching) designed to enhance decision-making about community participation among young adults with serious mental illnesses (SMI). We will use a single-group, pre-post, convergent mixed methods design to explore implementation and whether and how the intervention impacts decision-making and community participation outcomes. We will aim to recruit 40 participants in this intervention study. This design will enable us to link themes regarding participants' experience of the intervention with quantitative measures of decision-making and community participation.
Interventions
BEHAVIORALPeer decision coaching
Peer Decision Coaching is a brief, personalized intervention grounded in evidence-based decision- and peer support principles. During the intervention, a trained peer specialist supports the young person in identifying a decision related to community participation that they need to make, such as whether to work or go to school, helping them address decision-making needs, and assisting them with developing and implementing a decision-making plan. Ultimately, the intervention aims to support young people in pursuing their community participation interests and goals.
Sponsors
National Institute on Disability, Independent Living, and Rehabilitation Research
Temple University
Study design
Allocation
NA
Intervention model
SINGLE_GROUP
Primary purpose
SUPPORTIVE_CARE
Masking
NONE
Eligibility
Sex/Gender
ALL
Age
18 Years to 30 Years
Healthy volunteers
No
Inclusion criteria
* 18-30 years of age; * Experiencing a SMI, as determined by: (a) self-reported psychiatric diagnosis of schizophrenia-spectrum or major affective disorder, and (b) self-reported current or past functional impairment due to experiencing mental health challenges in one or more major life areas (i.e., work school, social activities) * Able to identify at least 2 areas of community participation that individuals want to be doing more in in the next 6 months * Current sufficiency of community participation (i.e., number of important participation areas done enough / number of important participation areas) of 50% or less.
Exclusion criteria
* Unable to provide informed consent, as assessed by research staff using an active recall method * limited ability to act on decisions due to self-reported legal, residential, or guardianship restrictions.
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Change in decisional conflict scale | Baseline, through intervention completion (up to 3 months) | The Factors Contributing to Uncertainty subscale of the Decisional Conflict Scale measures decision-making needs. Possible scores range from 0 to 36, with higher scores indicating a worse outcome. |
| Change in decision self-efficacy scale | Baseline, through intervention completion (up to 3 months) | The Decision Self-Efficacy Scale assesses confidence in making an informed choice. Possible scores range from 0 to 44, with higher scores indicating a better outcome. |
| Decision-making behaviors at post-intervention | Post-intervention (up to 3 months post-baseline) | Number of behaviors (range: 0-6) endorsed on Decision-Making Behaviors scale at post-intervention. |
| Decision Satisfaction Scale Score at post-intervention | Post-intervention (up to 3 months post-baseline) | The Decision Satisfaction Scale assesses a person's satisfaction with a health decision. Possible scores range from 6-30, with higher scores indicating a better outcome. |
| Change in Temple University Community Participation Measure (sufficiency) | Baseline, through intervention completion (up to 3 months) | Sufficiency scores on the Temple University Community Participation Measure assess how satisfied individuals are with their amount of community participation in areas that are important to them. Possible scores range from 0-100, with higher scores indicating a better outcome. |
| Change in Temple University Community Participation Measure (breadth ratio) | Baseline, through intervention completion (up to 3 months) | Breadth ratio scores on the Temple University Participation Measure assess breadth of participation in areas considered important to a person. Possible scores range from 0-100, with higher scores indicating a better outcome. |
Countries
United States
Outcome results
None listed