Fanconi Anemia
Conditions
Brief summary
The goal of this observational study is to analyze the data included in the Spanish Registry of Patients with Fanconi anemia to better understand the natural history of the disease, identify genetic risk and prognostic factors, and identify potential therapeutic strategies.
Interventions
None listed
Sponsors
Fundació Institut de Recerca de l'Hospital de la Santa Creu i Sant Pau
Study design
Observational model
COHORT
Time perspective
OTHER
Eligibility
Sex/Gender
ALL
Healthy volunteers
No
Inclusion criteria
* All patients in the Spanish Registry of Patients with Fanconi Anemia
Exclusion criteria
\-
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Description of the clinical evolution of the patient | 1 month | Study the clinical evolution of patients with Fanconi anemia |
Countries
Spain
Outcome results
None listed