Cerebral Palsy
Conditions
Keywords
cerebral palsy, childhood disablity, gross and motor function, participation, quality of life
Brief summary
Cerebral palsy (CP) is non-progressive disorder, which undergoes mishap to the developing brain and it affects a person's ability to move and maintain balance and posture. Old name of CP is Little's disease.Through social and community participation, children and youth with cerebral palsy (CP) form friendships, gain knowledge, learn skills, express creativity, and determine meaning and purpose in life. The purpose of this study is (1) to determine whether social and community participation of children and youth with CP differ based on age, sex, and gross motor function, and (2) to identify the types of activities in which social and community participation are highest
Detailed description
Those participants will be excluded having any unstable medical condition that precluded safe community physical activity, any orthopedic or neurological surgery in the previous 6 months, moderate to profound intellectual disability, moderate to severe communication disability, severe visual impairment, any sensory impairment or psychological disorder. The tools that will be used are WHODAS 2.0(WHO Disability Assessment Schedule), Washington Group Short Set of Disability Questions, Child and Adolescent Scale of Participation Activities of Daily Living, Functional Mobility and Participation. Data will be analyzed on SPSS version 25, normality of the data will be checked and data will be presented in the form of descriptive statistics, mean, SD range correlation.
Interventions
None listed
Sponsors
Riphah International University
Study design
Observational model
OTHER
Time perspective
CROSS_SECTIONAL
Eligibility
Sex/Gender
ALL
Age
6 Years to 12 Years
Healthy volunteers
No
Inclusion criteria
Washington Group on Disability Statistics (WG) score greater than or equal to 12. * Children with age group of 6 to 12 years. * With diagnosis of CP. * WHOdas Cognition - score 2.5. * Mobility - score 2.5. * Self-care - score 2.5 attending to one's hygiene, dressing, eating and staying alone. * Getting along -score 2.5 interacting with other people. * Life activities -score 2.5 domestic responsibilities, leisure, work and school. * Participation - score 2.5 joining in community activities, participating in society
Exclusion criteria
Any unstable medical condition that precluded safe community physical activity. * Having any orthopedic or neurological surgery in the previous 6 months. * Moderate to profound Intellectual disability. * Moderate to severe communication disability. * Severe visual impairmen
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Washington Group Short Set of Disability Questions | 6 weeks | The WG-SS is intended for use in censuses and surveys To maximize international comparability, the WG-SS obtains information on difficulties a person may have in undertaking basic functioning activities that apply to people in all cultures and societies and of all nationalities and so are universally applicable. |
| Child and Adolescent Scale of Participation | 6 weeks | The CASP is a 20-items 4-scales parent-report instrument covering attendance and involvement in the areas home, community, school, and living activities. |
| Communication Function Classification System | 6 weeks | The CFCS is a tool used to classify the everyday communication of an individual with cerebral palsy into one of five levels according to effectiveness of communication. It consists of five levels which describe everyday communication ability |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| WHODAS 2.0 participation in home and community in children with cerebral palsy | 6 weeks | practical, generic assessment instrument that can measure health and disability at population level. It captures the level of functioning in 6 domains of life |
Countries
Pakistan
Outcome results
None listed