Lung Disease Chronic
Conditions
Brief summary
Only little information exists about the long term consequences of having severe lung disease in childhood. The patient population is heterogenous and the prognostic markers are few. This observational study will investigate which parameters that can be used to predict the outcome of having severe lung disease in childhood.
Detailed description
All patients aged 0-18 years at the HCA Childrens Hospital with a severe lung disease will prospectively be registered in a database. At a yearly follow up, data from the patient record will be registered. Informed consent from the patients and/or their parents will be obtained. Registered data will include height, weight, results of lung function tests and imaging diagnostics. The study will provide knowledge of the prognosis of different lung diseases and how to monitor lung function in children.
Interventions
DIAGNOSTIC_TESTlung function measurements
Patients will once a year be monitored with different lung function methods
Sponsors
Odense University Hospital
Study design
Observational model
COHORT
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
1 Days to 18 Years
Healthy volunteers
No
Inclusion criteria
severe lung disease -
Exclusion criteria
no informed consent \-
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| FEV1 | 18 years | liter |
| FVC | 18 years | liter |
| Lung Clearance Index (LCI) | 18 years | number |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| height | 18 years | meters |
Countries
Denmark
Contacts
Primary ContactJosefine Gradman, PhD
Outcome results
None listed