Aging, Attitude, Decision Aid, Decision-Making, Hospice Care, Knowledge
Conditions
Brief summary
This study will sample older Black adults to test their knowledge and opinions of hospice.
Detailed description
Short stays in hospice strain the Medicare system. Black adults over age 65 are one of the fastest growing groups in the US. Despite greater disease burden than their White peers, older Black adults are less likely to enroll in hospice. Misconceptions about hospice and mistrust may contribute to this disparity. The research will seek to understand older Black adults' decision-making processes around hospice. The PtDA is a tool to assist in this decision-making process. The influence of this tool will be measured as well. The sample of older Black adults will represent the national population. The research will explore various subgroups, which previous research has been unable to address. This study will use four validated survey batteries. About 200 of the 400 participants will also review the decision aid. These adults will complete a second survey. About 20 of these adults will also complete an interview about the decision aid. Through the surveys and interviews, this research will explore barriers to hospice usage for older Black adults.
Interventions
OTHERIDECIDE-HOSPICE
12-pg educational booklet detailing information about hospice including what hospice is, why someone would use hospice, who pays for hospice, and where hospice services are delivered
Sponsors
University of Colorado, Denver
Study design
Allocation
RANDOMIZED
Intervention model
SINGLE_GROUP
Primary purpose
HEALTH_SERVICES_RESEARCH
Masking
DOUBLE (Subject, Investigator)
Eligibility
Sex/Gender
ALL
Age
65 Years to 99 Years
Healthy volunteers
Yes
Inclusion criteria
* Identifies as Black or African American * Can read and write English
Exclusion criteria
* Unable to read/write English * Have a cognitive impairment that prevents them from providing informed consent
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Hospice Knowledge | June 2023 through September 2023 | assessed using 23-item hospice knowledge survey |
| Hospice Beliefs and Attitudes | June 2023 through September 2023 | measured using 8-item Hospice Beliefs and Attitudes Scale (HBAS) |
| Self-Efficacy | June 2023 through September 2023 | assessed using 11-item Decision Self-Efficacy Scale (DSE) |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Medical Mistrust | June 2023 through September 2023 | measured using 17-item Medical Mistrust Index (MMI) |
Countries
United States
Outcome results
None listed