Bone Marrow Transplant
Conditions
Brief summary
The objective of this project is to trans-create, conduct user testing of a previously developed and piloted mHealth app, and user acceptability with parents of children in the acute phase post-allogeneic hematopoietic stem cell transplant (HSCT). Nationwide Children's Hospital (NCH) will be the primary data collection site and Columbia University Irving Medical Center will be a secondary site.
Interventions
OTHERBMT4me
Caregivers will pilot test a Spanish version of the BMT4me app at a single time point.
Sponsors
Columbia University
Nationwide Children's Hospital
Study design
Observational model
OTHER
Time perspective
CROSS_SECTIONAL
Eligibility
Sex/Gender
ALL
Age
0 Years to 17 Years
Healthy volunteers
No
Inclusion criteria
Eligible caregivers must have children who: 1. Are 0-17 years old 2. Underwent HCT 3. Are planned for discharge prior to day 100 post-transplant Primary caregivers must: 1. Be Spanish speaking 2. Be ≥18 years old 3. Have a smartphone (iOS or Android) capable of downloading apps
Exclusion criteria
(a) Children or caregivers with pre-existing neurodevelopmental disorder/disability or a pervasive developmental disorder will be excluded from this study.
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Assess app usability using the System Usability Scale (SUS) | 6/1/24 - 5/1/26 | Data collected using the System Usability Scale (SUS) will provide insight to the usability of the Spanish BMT4Me app in its current form. he SUS is a 10-item questionnaire routinely used to evaluate the functionality and acceptability of mHealth apps. The SUS is scored on a scale, giving a score from from 0 to 100 where 100 is considered the highest rating of usability. A score of \> 68 is considered above average. |
Countries
United States
Outcome results
None listed