Neurologic Disorder, Rett Syndrome
Conditions
Brief summary
Children with Rett syndrome are in a period of rapid growth, and proper and appropriate nutritional support is very important. Past foreign research papers it has been pointed out that most of these patients have feeding difficulties, dysphagia, and digestive tract abnormalities, are often constipated, and may suffer from osteoporosis and other problems. Lack of proper nutritional support will seriously affect their growth, development and health. in view of There is a lack of relevant research in China, so the investigators would like to use this research to explore the nutritional, growth and postural status of Rett's disease patients, as the reference direction and goal of dietary adjustment and nutritional support for patients, and establish dietary and nutritional strategies for sick children in Taiwan.
Interventions
OTHERNutrition and Growth Status
Nutrition and Growth Status
Sponsors
National Taiwan University Hospital
Study design
Observational model
CASE_ONLY
Time perspective
RETROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
1 Years to 18 Years
Inclusion criteria
* Rett syndrome patient.
Exclusion criteria
* Not Rett syndrome patient.
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| gender, age , disease history checklist | 1 year | — |
| Change in Body height | 1 year | The growth status of the case will be assessed |
| Change in Body weight | 1 year | The growth status of the case will be assessed |
| Change in knee height | 1 year | The growth status of the case will be assessed |
| Change in arms height | 1 year | The growth status of the case will be assessed and growth curve |
| Change in waist | 1 year | The growth status of the case will be assessed |
| Change in hip circumferences | 1 year | The growth status of the case will be assessed |
Outcome results
None listed